Forget Me Not.

[MaeDae]

Yes, its official, Im nuts. Although the Dr. never said that, but I could sense it like a sixth sense. He pratically told me there was no relation to my aneurysm and the probability of me having seizures/auras. That is was highly unlikely that i would even experience seizures because of where the annie was, even though i had some blood on the brain during the annie, that there was no actual damage done to my brain. He also said that he didnt have to retract my scalp/head that much to clip the bleed. It seemed the more I told him of the things that i was experiencing, (I gave him a list of things that I had been experiencing) the more he assured me that those episodes didnt even sound like a neuro problem. In a kind way, he said possible psycottic, hormornial, perhaps anxiety (spelling), but still doesnt sound like a neuro problem. We talked about how I had been a ping-pong ball for the last 6 months and I told him because of lack of a medical definition or diagnosis, I googled my symptoms my self. We both laughed, and assured me it was ok for me to seek a neurologist if i was not happy with the current one. He asked if my primary Dr was aware of what was going on, I told him that she was, but I felt that she was a little standoffish (afraid of me) because, I was pretty much in the same situation when I had the aneurysm. I was telling everyone something was wrong and they missed it. Im not sure how she feels, I only know that now when I tell her I feel weird, out of sorts, heart beating 2 fast etc, she reacts as if she is looking at a ghost. He continued to stare at me, i asked if he could see the twitching in my face, mainly my nose and he said no of course. He told me that he didnt need to see me for another 5 years, I thanked him for taking time from his busy schedule, especially since I was 45 min late (long story). The only episode he was concerned about was the driving one, where I lost time, Needless to say, I left feeling worse than when I first walked in the door, but I was so proud of myself for not shedding one tear. Not until I reached my car. I lit a cigarette, prayed that my head would not explode and cried some more. I had a horrible morning. sorry for babling, but thanks for listening.

 

[Nakamova]

assured me it was ok for me to seek a neurologist if i was not happy with the current one

I agree that the lost time while driving is a scary symptom, and it may be worth pursuing this until you get some answers that add up. Seeing another neurologist might be worth it.

 

[LW6279]

Think back a few years when I was having weird sensations before I started to have siezures. I have gone to appts. on the wrong day or wrong time. I would be driving somewhere and forget my exit on the hwy or where I just came from. Your not crazy this stuff is real. You just need to find a Dr. that will take the time to listen and real care to find out what is going on with you. Dr. shop and find a good one. I hope your day is going better.

 

[MaeDae]

Hi All, Thanks for your support. It's greatly appreciated. I am so glad I found a place to talk. I spend to much time alone. I dont need to think any more, or google my symptoms. Im sure what is happening to me is real. I saw my GP yesterday. She had not gotten a report from the neurosurgeon, but she suggested that I see a different neurologist. Im exhausted, tired, bewildered. I cant say alone, because I can atleast tell anyone who is willing to read/listen here (Im grateful for that). My GP advised that I take someone with me to my appts, I decided since I had no one to take, I'd a tape recorder instead. Anyone having seizures/auras because of an aneurysm of the posterior communicating artery? That narrows it down atleast for me. In the mean time, Im going to try and find something else to focus on and try my damndest to ignore the little nuancess, like feeling detatched (the sensation of melting), little white orbs of light with tails, ears blowing up like a balloon, ect... . Im going to drink lots of coffee cause I need the energy. Im going to wait a week and then try to make an appt with the neurologist my GP refered. Thanks everyone, Thank you for everything.

 

[stormydys]

Yes, its official, Im nuts. Although the Dr. never said that, but I could sense it like a sixth sense. He pratically told me there was no relation to my aneurysm and the probability of me having seizures/auras. That is was highly unlikely that i would even experience seizures because of where the annie was, even though i had some blood on the brain during the annie, that there was no actual damage done to my brain. He also said that he didnt have to retract my scalp/head that much to clip the bleed. It seemed the more I told him of the things that i was experiencing, (I gave him a list of things that I had been experiencing) the more he assured me that those episodes didnt even sound like a neuro problem. In a kind way, he said possible psycottic, hormornial, perhaps anxiety (spelling), but still doesnt sound like a neuro problem. We talked about how I had been a ping-pong ball for the last 6 months and I told him because of lack of a medical definition or diagnosis, I googled my symptoms my self. We both laughed, and assured me it was ok for me to seek a neurologist if i was not happy with the current one. He asked if my primary Dr was aware of what was going on, I told him that she was, but I felt that she was a little standoffish (afraid of me) because, I was pretty much in the same situation when I had the aneurysm. I was telling everyone something was wrong and they missed it. Im not sure how she feels, I only know that now when I tell her I feel weird, out of sorts, heart beating 2 fast etc, she reacts as if she is looking at a ghost. He continued to stare at me, i asked if he could see the twitching in my face, mainly my nose and he said no of course. He told me that he didnt need to see me for another 5 years, I thanked him for taking time from his busy schedule, especially since I was 45 min late (long story). The only episode he was concerned about was the driving one, where I lost time, Needless to say, I left feeling worse than when I first walked in the door, but I was so proud of myself for not shedding one tear. Not until I reached my car. I lit a cigarette, prayed that my head would not explode and cried some more. I had a horrible morning. sorry for babling, but thanks for listening.

I am sorry you had to go through that, I have been to a neurologist that made me cry in his office , you said something about your heart beating to fast and feeling weird, well my sister has some heart defect and it was the cause of her heart beating to fast, I will get back to you with a name for the condition. The other symptoms you mentioned are problems that I have been treated for by a neurologist. I think a new neurologist is in order, good luck