frustrated

[Honor3flee]

I get sharp pains above my ears like ice pick, several bad headaches a week, very moody, frustrated, emotional, cant work and just dont know what to do anymore. I wish I had insurance and they could put me on a medicine that works. I can't stand for anyone to touch my arm to calm me down, I just want to scream "leave me alone". I've had E since 1978 but I have 3 different types now, Petit mal, motor sensory, and grand mal.

Why does the process have to be so long and frustrating? Am I the only one that feels this way?

Thank you

 

[screaminghelix]

I have found that much of the medication we take has the tendency to cause severe headaches and have emotional ramifications. I know when they took all of my meds away at Mayo, I became very emotional. I cried at a episode of NCIS. lol And as far as meds go, I was paying @ $800 bucks a month for mine until Medicare kicked in. I did and still do work with my Dr to get samples. If you haven't, you should tell them your situation and ask to see if they will give you a few months worth. Might not stop the bleeding of cash, but it will help. -Jeff

 

[Nakamova]

Unfortunately the road to epilepsy diagnosis and treatment can be a long and bumpy one with many detours. Are you on any medication at all right now? As screaminghelix says, some meds can cause headaches, moodiness, and peripheral neuropathy.

There may be ways to get the medication you need. See http://www.coping-with-epilepsy.com/forums/f23/when-you-cant-afford-medication-1452/ for suggestions.

 

[Honor3flee]

Im on Carbmezapine but my PCP has told me there is nothing more she can do for me since I don't have insurance, she will only raise the dosage which she did to 600mg a day and im still having seizures daily.

I know it needs to be changed but can't afford the more expensive medicine and waiting on Medicaid to make their decision. I've had epilepsy for 35 years, but within the past 9 months is has gotten worse with more symptoms, so I wait, deal and get frustrated. My family is great and drive me where I need to go.