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cazbar

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Hello, lavish ladies and lovely lads. It is a privilege and honour to be welcomed into your ranks.

My name is Carolyn, but most call me Caz. One friend in particular dubbed me Casbah, of Rocking the Casbah fame, but as I am neither Algerian nor a large citadel type structure, I have stuck to the Cazbar spelling.

I'm a 26 year old Australian girl who lives in the lower north shore of Sydney. It's a lovely place to live and I feel so lucky to be here. I grew up a couple of hours south of Sydney in a more rural area, but I am a city girl at heart and can't imagine living anywhere else.

I am currently studying my Masters degree in writing whilst working full time running the practices of some consultant psychiatrists in a psychiatric hospital. I love reading, writing, film and television. My ideal job is to one day be a successful television screenwriter who, in her spare time, pens amusing misanthropic comedy novels and addictive chick lit whilst dabbling in film and stage productions. I've been told this is highly unrealistic. I'm okay with that.

I was officially diagnosed with temporal lobe epilepsy about two and a half to three years ago, although I know that I have had it for a lot longer than that. Because it only ever manifested itself as simple partials (and still has, fingers crossed), I never really understood what was happening to me as a child, so I never thought to speak to anyone about it. It was only after I had started working for my psychiatrists a few years back that I became familiar with terms such as "derealisation", "depersonalisation" and "dissociation", and then when I got my first seizure since my adolescence, I at once understood that I was having a neurological event and began to research. I diagnosed myself and, not long after, I saw a neurologist where my hunch was confirmed.

Part of the reason I am here is to understand what it is like for other sufferers, particularly those with more severe seizures. I know I am unspeakably lucky to have had such a mild course up until now. I am also writing a small work as part of my university studies about the experience of a seizure from the sufferer's perspective, and how to convey that event in a written text (likely a screenplay) - because it bugs the bajeezuz out of me that all I ever see about epilepsy on film and tv is taken from the perspective of the observer of the seizure! They never focus on how it affects the sufferer at the time, only the way in which it impacts on people around them, and that needs to change. Who's with me? *grabs a pitchfork and flaming torch*
 
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Hi Cazbar,

Welcome to CWE, you will meet some great people here who will give you some great information.
Do you know where in your brain the seizures are coming from?

I am also an Aussie (live near the NSW/VIC border) & there are a few other fellow Aussies on here as well.

I have left front temporal lobe epilepsy & had scarring on my left front temporal lobe. I used to have grandmal seizures (tonic clonics) as a baby from 9 months - approx 2 - 3.
I went approx 21 years a seizure free but in 2012 when I was 24 I started taking seizures again. After my seizures returned I mainly took auras & partial seizures, I tried 5 different Anti Epilepsy Meds none of which completely controlled my seizures.
I was eventually referred to an epitiologist & discussed with him about having brain surgery to help control the seizures. I went through all the testing for surgery in 2010 & in March 2011 I had a left temporal lobe laboctomy. I consider myself lucky as so far the surgery has been a success (unfortunately the surgery doesn't work for everyone) & I have been seizure free since the surgery :).

Good luck with the rest of your studies :).
 
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but as I am neither Algerian nor a large citadel type structure, I have stuck to the Cazbar spelling.
:roflmao:
Hello and welcome to CWE!! :D

Some of the most vivid and moving descriptions I've seen about life and struggles with living with epilepsy are posted as poetry and stories in the Creative Writing forum. :)
(There's a link in my forum signature.)

I'm curious though, since you're working full-time and working on a Masters (Excellent job by the way!)... when you had a neurologist confirm what you believed, were you put on medication of some type to control the seizures?
 
Welcome aboard!
I think that you have great promise as a writer! I enjoyed your introduction emensly. As you can tell, I don't spell very well (but it looks like I rhyme)! Glad to have you hear :)
 
Thanks guys and gals!

CQ, nice to talk to someone from my neck of the woods, and so darned positive that the surgery worked! Kudos to you :) They haven't pinpointed where mine comes from, alas. My two EEGs and MRI have come back without any evidence of anything. I had nerve conduction studies done too, because of some numbness, tinglies and twitching in my arms, legs and face, but they came back all clear too. T'is a mystery.

Silat, thanks for the heads up about the writing forum - I am looking forward to nestling in for some reading. :D And no, I have never been on any medication for it. It was decided between myself and my neurologist that it wasn't worth it. I also have polycystic ovarian syndrome and insulin resistance, and the metabolic side effects of antiepileptic medication (weight gain in particular) is more of a problem for me than the seizures are at this point. If it progresses past just the irritating effects of a simple seizure into something worse, I will go back and start some medication pronto.

You rhyme beautifully, huskymom. Is that your gorgeous puppy dog in your icon? So majestic, yet so cuddly! I have a husky living on the corner of my street and I always stop to say hello to him when I walk past, they're such special creatures.
 
Hi caszbar, I'm adding my welcome to the others!

Hope you feel free to explore the other forums here. We have quite a few other aussie members, so you'll have plenty of folks to chat with when my part of the world has gone to sleep...

Best,
Nakamova
 
Welcome Caz!

I am a parent of a newly diagnosed daughter. You will find so many informed and intelligent people on CWE. I'm glad to hear that you are having a very active life without meds. We are searching for the new normal that it appears that you have found. So happy for you!

Tom
 
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