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Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

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Ravensong

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I am new here, but not new to epilepsy. I was diagnosed about 30 years ago with complex partial seizures after having a massive grand mal at work, and have had varying degrees of control since. I've been on lots of different meds, was video-tested to see if I might be a surgical candidate (I wasn't, because they could not locate a focus), and am currently controlled (I think) on generic Topamax.

I decided to join the forum because...well, I'm having some frustrations and I think they may be epilepsy-related. I recently switched to the generic form of Topamax because the brand name was outrageously expensive and I seem to be doing ok, but I have lots of other medical issues, so sometimes it's hard to tell. My seizures are not always that clear-cut (I have lots of sensoral symptoms, and also see and hear things), and have some trouble describing them.

Anyway, happy to be here! I hope to learn some things, and provide some support where I can.
 
Hi Ravensong, welcome!

Best,
Nakamova
 
Welcome Ravensong:)

I think you'll get a lot of good out of CWE. There are lots of great people here who are very supportive and knowledgeable.:)
 
Welcome :hello:
I have to tell ya this place has gotten me through a lot of rough nights:giveup:

also I used to take topamax but it made me so out of it!!!! :flushed: I later found out doctors refer to it as dope-a-max!@!@#$%^!!!! do you have any of these problems???

Anyways..... I just wanted to introduce and say glad ur here I look forward to seeing more of ur posts

:star:

Mia
 
Ravensong said:
I am new here, but not new to epilepsy. I was diagnosed about 30 years ago with complex partial seizures after having a massive grand mal at work, and have had varying degrees of control since. I've been on lots of different meds, was video-tested to see if I might be a surgical candidate (I wasn't, because they could not locate a focus), and am currently controlled (I think) on generic Topamax.

I decided to join the forum because...well, I'm having some frustrations and I think they may be epilepsy-related. I recently switched to the generic form of Topamax because the brand name was outrageously expensive and I seem to be doing ok, but I have lots of other medical issues, so sometimes it's hard to tell. My seizures are not always that clear-cut (I have lots of sensoral symptoms, and also see and hear things), and have some trouble describing them.

Anyway, happy to be here! I hope to learn some things, and provide some support where I can.
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I have to say generic is always cheaper :P it has always worked for me and I never noticed a change from switching to generic but if you think its a problem maybe you doc can give you a discount on the regular brand :) and welcome to the site even though I just joined today :P I enjoy it already and I'm sue you will to :)
gabbyg2000
 
Well true! Frustration is the word! Sometimes we people get frustrated bcoz the array of problems from Epilepsy is vast, physical, mental, emotional and social! But dear lets live. Live with all positive thoughts! It works! Read some book on positive thinking!
 
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