Melissa Hawaii
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Aloha everyone! Ive been reading all of your interesting postings. Sometimes ... These are this is what helps me get through the day
Im a mommy if a eleven year old boy who had seizures from 9 years old. Again, they don't know why. Mid january is when is when the seizures came back in full force. It was controlled with tegeretol and keppra for about a year. Except, he would have numbing in all his extremities once a day. He was still functionable. January came and he started dropping at school. And now he having absence seizures. Like one a week, sometimes two. They kept increasing the keppra but it didnt help. He would feel the numbing come on then know his seizure is coming. Sometimes deep breathing helps. But not always. Then, the tegeretol was increased because I told the doctors keppra was changing my little boys moods. He wasnt being himself. Last tuesday he had a seizure at school. Before it happened he had a numbing srnsensation and ran to the healthroom. Immediately after sitting down he had a seuzure. He looked like he was sleeping sitting up. It lasted 20 min. I took him to the hospital and everything came out normal. They added Dilantin to the mix of meds. Hes now on 600mg.of tegeretol, 800mg of keppra, and 150 mg. of dilantin. His neuro said hes going to decreade and then take him off the keppra. This morning he had another 20 minute seizure...so does that mean even all three meds arent working? Isnt five days enough time to tell?
This weekend there was this huge brain fair on oahu. My husband took my son. Our prayers were answered when the only epileptoligist in hawaii said he would check my son out and give us a second opinion
He doesnt usually take kids but he will take our boy. I figure it wouldnt hurt. He came highly recommended...dr.alan stein is his name. Were so scared to send him to school. But he loves school and wants to go. The funny thing is his grades have improved since his seizures started coming back! He tells me all the time that he will be okay, and not to worry. What an example of endurance,and not letting this bring him down. He continues to be rascal as ever! Hes just bummed because hes not able to go diving for fish with his dad lately.
Any input I would so appreciate!! This forum is awsome!
Im a mommy if a eleven year old boy who had seizures from 9 years old. Again, they don't know why. Mid january is when is when the seizures came back in full force. It was controlled with tegeretol and keppra for about a year. Except, he would have numbing in all his extremities once a day. He was still functionable. January came and he started dropping at school. And now he having absence seizures. Like one a week, sometimes two. They kept increasing the keppra but it didnt help. He would feel the numbing come on then know his seizure is coming. Sometimes deep breathing helps. But not always. Then, the tegeretol was increased because I told the doctors keppra was changing my little boys moods. He wasnt being himself. Last tuesday he had a seizure at school. Before it happened he had a numbing srnsensation and ran to the healthroom. Immediately after sitting down he had a seuzure. He looked like he was sleeping sitting up. It lasted 20 min. I took him to the hospital and everything came out normal. They added Dilantin to the mix of meds. Hes now on 600mg.of tegeretol, 800mg of keppra, and 150 mg. of dilantin. His neuro said hes going to decreade and then take him off the keppra. This morning he had another 20 minute seizure...so does that mean even all three meds arent working? Isnt five days enough time to tell?This weekend there was this huge brain fair on oahu. My husband took my son. Our prayers were answered when the only epileptoligist in hawaii said he would check my son out and give us a second opinion
He doesnt usually take kids but he will take our boy. I figure it wouldnt hurt. He came highly recommended...dr.alan stein is his name. Were so scared to send him to school. But he loves school and wants to go. The funny thing is his grades have improved since his seizures started coming back! He tells me all the time that he will be okay, and not to worry. What an example of endurance,and not letting this bring him down. He continues to be rascal as ever! Hes just bummed because hes not able to go diving for fish with his dad lately. Any input I would so appreciate!! This forum is awsome!