hay im new here!

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balletmoma

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hay im new here!
so sorry if i do or type something wrong!
I just found out a month ago i have epilepsy and they found a growth on my temporal lobe. so keprra didnt work it was making me sleep too much and i was still having seizures. Now im on the carbatrol 200mg three times a day and the clonazepam 1mg twice a day. Jus wanted to know if anyone else was feeling dizzy,drain. sleepy and unstable like myself. its killing me i cant keep up with my daily tasks im a full time student , i work crazy hours to help my mom and a single parent of two little girls. can anyone help? I normally suffer from complex partial seizuires but at school i had a grand mal in class and they had me in the hospital for 2 days.
 
Welcome balletmoma

Good to have you here. There are a lot of members here on those medications.

I'm on Carbatrol (called carbamazapine CR where I am) and have been for a few decades. I've recently been put on Clobazam and am just getting used to it. I don't know how close it is to clonazepam but it is also a benzo-diazapene.

What you are describing sound like typical side-effects of your anti-epileptic drugs. I know it's hard because you're at school but I would highly suggest you stay on them for a while. It can take as long as a month for your body to get used to the side-effects and it would be a shame to stop if they were to control your seizures. I used to explain my seizures to my teachers & asked if I could record their lectures since my focus was so poor, especially for 2 or 3 hour lectures. When re-listenning to the lecture I would start in the middle or I'd just lose focus at about the same place again & not be any better off than I was initially.

I would check to see what your school has to help people with various disabilities. Personally I don't think of myself as disabled so I hate asking for anything but I've learned that in some cases it just makes more sense to do so.

Also, I gave your post its own thread so that you can get the official CWE welcome from everybody.
 
Hi! I'm also new here and have just started taking carbamazapine (Tegretol) last week but I stopped taking it yesterday as it was making me feel so bad, i felt and was physically sick and it was like i was drunk or something and I am also a full time student so I couldnt do any college work because i couldnt focus or anything...im hoping there will be another medication i will be able to use as i didnt see the point in taking something that made me feel worse than when i was having partial seizures! I called and left a message with my doctor today to say I have stopped taking the pills but he hasnt got back to me yet...Maybe your doctor can try you on something else? x
 
Please, if stopping your medications don't do it cold turkey. I wouldn't do it without telling my doctor first but to stop suddenly can provoke worse seizures than you've been having before.

If you do stop please ween yourself off slowly.
 
Lillyrush said:
Hi! I'm also new here and have just started taking carbamazapine (Tegretol) last week but I stopped taking it yesterday as it was making me feel so bad, i felt and was physically sick and it was like i was drunk or something and I am also a full time student so I couldnt do any college work because i couldnt focus or anything..
Click to expand...

Hello and welcome. If you've only been taking Tegretol for a week, give it some more time. When I first started Tegretol, I was sooooooooooo tired all the time. I slept a lot. But after the first month, I felt back to normal again. Is there a way you can have your doctor write a note to your school? Maybe they can accommodate you somehow for the first month or so that you're on the med until the side effects wear off.
 
Hi balletmoma and welcome to CWE.

I too have temporal Lobe Epilepsy and I'm also taking clonazepam (0.5mg) every 4 hours except at 10:00PM I take a whole tablet. I also take dilantin 100MG 2 tablets in the AM & PM.

I tried taking the 1/2 clonazepam every 6 hours, then I tried every 5 hours, then finally every 4 hours worked.
 
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