Hello all, greetings from central Europe

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Nakamova said:
Congrats on being seizure-free. I wonder if what you experience is the med kicking in, doing it's job. Is the feeling one of anxiety?
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I feel exactly like I'm loosing the chain of my thoughts. It's very hard for me to focus on something. Once, I called my wife, I have her on first place in phone, it was like "hello honey I think I'm gonna have seizure I will sit under the tree in a park take car come for me ok?" she asked "where are you now?" I responsed "I'm at ... you know ... where we wanted to buy ... buy ..." I was not able to get what we wanted to buy there (It was actually some concrete floor cover). Then I came to that park, settled down under a tree and waited for what was evidently coming ... after a minute or so ... nothing happened.
 
Hmm, it actually sounds like a simple partial seizure, or a bit of a "breakthrough seizure". You might want to ask your doctor about upping your dose slightly, just give you more of a safety margin. Do you know if there's a particular trigger for those particular moments, or is it just random?
 
Hi, thank you for the posts. Medications scare me. I believe that I started having more auras when the docs gave me depakote as a safety precaution when i had a brain injury/coma and had had a temp of 110 degrees F. At that time my EEG showed no seizure threat but after an experience like that they wanted to give me depakote as a precaution and then i started having petit mals. That was 25 years ago and i still wonder if that started the whole seizure thing for me. It slowly grew to petit mals and then T/C. After trying different things i am now on Keppra XR and worry about the side effects. For example, it takes away the libido and my depression is overwhelming (don't know if that is connected) And now they give me 300mg effexor for depression so what effects are from mixing the 2 meds? At least I eat very healthy, take lots of omega 3 oils (fish and flax), good vitamins and minerals. And, not driving any more means lots of biking/walking for good exercise. Too bad being a hopeless romantic that these conditions prevent any partnership in this life for the divorced man.
 
Schmeringa, did you gain any weight when you started Depakine? I just started gradually a few days ago and already feel that something is not quite right with my metabolism
 
Hi mia,

According to Epilepsy.com, up to half the patients taking Depakene gain weight while on the medication, so it's very possible that it's affecting your metabolism. Some side effects do lessen after the body adjusts to the med though, so it's possible that the Depakene won't be problematic in the long run.
 
Thank you, Nakamova. Actually this is also what my neuro told me about this med. More or less ;) And this is what I hope for, too. I would not mind the result schmeringa achieved with it for so many years, either
 
Hi:hello::hello:

I hope your meds. work out for you.

I was on Dilantin and Phenor. for over 30 years, new Dr. wanted me to go on Keppra, saying it was new and better than Dilantin.

I couldn't handle it, Dr. refused to take me off slowly. I found another Dr. who did change me back to Dilantin, added Clonazepam.

It such a pain going though meds. change. However that's the only way to find what works for you.
 
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