Hello all

Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

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Lizydae

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I've had epilepsy since I as 12 or 13(pretty much since puberty) with grand mal seizures/ no warnings or auras. Initially I was having them multiple times a month, but slowly over the years they have reduced to less then 5 a year( I'm 28 now). I have been on Depakote, Zonagran, And am currently on a mix of Zonisamide - Lamictal - and the Ketogenic diet with the goal of coming completely off of the medications and continuing with the ketogenic diet.

I'm here to make friends, learn more techniques others are using to prevent or stop seizures and to share what techniques I'm using.
Happy to meet you all.
 
! ! ! ! WELCOME TO CWE Lizydae ! ! ! !

Lizydae,
I feel that you have made a good decision in joining CWE!
There are many members who have lived w/E for decades and we will be more than willing to help you. If you have a question, put that question in a post and you will get answers. You need to make these posts because we can't read your mind and post answers without a question.
Again, WELCOME TO CWE. :clap:

acshuman
 
Hi Lizydae,

Welcome to CWE! Everyone here has been a great help to me and I've had E. for 44 yrs. Feel free to ask any questions. I've been on the ketogenic diet along with Depakene over the yrs. just like you have. Here's wishing you well and May God Bless You!

Sue
 
Howdy Lizydae! Make yourself at home. :)
 
Hi I'm new too, not only to this site but to forums too! Not new to epilepsy unfortunately! Does anyone get a weird smell before a fit. I have a couple of times. Like seaweed or sickly sweet rotten lillies?
 
Hi Lizydae & angellou

Welcome to CWE. You should both find this an awesome place with some great information.
 
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