Hi, I am Oeke and new here.
i am having epileptic attacks now for 10 years.
Since my status epilepticus the dosis of medication was increased.
But I still have attacks frequently. I don’t know the term for it, but it are small/short attacks and afterwards I am very confused and do things I can’t remember afterwards (as hitting people, running around, falling down the stairs, undressing myself). Since the use of clobazam (Frisium) I think that I don’t have the attacks during the nights anymore, but they still happen during the day around once every two weeks.
I am getting more and more isolated due to people getting scared when I am running around and do the strange things.
I hope to get more insight in how other people experience and cope with the attacks.
i am having epileptic attacks now for 10 years.
Since my status epilepticus the dosis of medication was increased.
But I still have attacks frequently. I don’t know the term for it, but it are small/short attacks and afterwards I am very confused and do things I can’t remember afterwards (as hitting people, running around, falling down the stairs, undressing myself). Since the use of clobazam (Frisium) I think that I don’t have the attacks during the nights anymore, but they still happen during the day around once every two weeks.
I am getting more and more isolated due to people getting scared when I am running around and do the strange things.
I hope to get more insight in how other people experience and cope with the attacks.