Hello CWE

Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!

Messages
3
Reaction score
0
Points
0
Hi. I am new to this forum and I would like to tell you about my experience in case someone has a similar one and could relate to me.

I woke up with a headache and went back to sleep. I woke up in ICU 5 days later. It seems that my taking Coumodin and Aspirin at the same time caused me to bleed in my head. I was taking these meds cause I have Congestive Heart Failure and was also in A-Fib. Luckily my sister came over and found me sleeping on my bed. She prepared dinner and when she came to wake me up, I wouldn't. She then called 911. I was sent to CPMC in San Francisco. I guess the doctors thought that I was a goner. I come from a family of 10, with me being the youngest at 44 years old. I had friends and family from all over the country (Hawaii, New York, Seattle, Chicago, etc.) come and visit me while I was still in my coma. The doctors did a Craniotomy on me twice and told my family after the second one that it didn't look good and that they wouldn't go back in a 3rd time. They also told my family that there were some tough decisions coming. They even had the priest come in and give me my last rites. Everyone was pretty sure that that was it.

However on the 5th day, I woke up. I wasn't very strong yet I was very alert. I could tell the time and recognize everyone. After 2 weeks I was released from the hospital. In the first month after being released I suffered 4 or 5 focal seizures in which my speech was slurred and the wrong words were coming out of my mouth. I would say San Francisco when I meant to say her. The last seizure I had was my right hand going weak.

It is now 43 days since my last seizure and 80 days since this happened and I feel 100%. My doctors have cleared me to fly and are letting me drive in 3 weeks. This is good cause my 25th high school reunion is in July and I was the class president. It's amazing that I have nothing wrong with me.

I'm hoping that this may brighten someone's day or at the least give them hope in getting better.
 
it did thank you i have epilepsy uncontrolled and have had some real close calls but nothin like that.'survivor'.
 
Hey miraclerock, welcome to CWE!

It sounds like scarring or trauma from the craniotomies may have caused your focal seizures. It's great that you have recovered are now seizure-free! Are you on any medications, or are you med-free too?

Best,
Nakamova
 
I wish I was med free. I was originally put on Zimpat, Dilantin and Keppra. Zimpat was removed after a week. So I am taking 3000 mg of Keppra and 800 mg of Dilantin a day for at least another 6 months according to my Neurologist. Another lucky thing is that I am going to UCSF to see my neurologist and UCSF is ranked number 4 in the country for neurology.


Sent from my iPad using Tapatalk HD
 
What an amazing story miraclerock, thank you for sharing. So wonderful that you are feeling 100% in such a short amount of time. Like Nakamova, I was wondering if you are medication free as well.

I hope that things continue to go well for you. :)
 
Amazing story! A similar thing happened to my mom last year. She had a brain aneurysm that burst. She was awake at the time and was rushed to the hospital right away, though. She was in the ICU for 2 weeks before they found the aneurysm, and then they did brain surgery to clamp it off. She's recovered 100% now. It really is a miracle. She was on Keppra for a while afterwards because of a risk of seizures while her brain was absorbing the blood, but luckily she didn't have any seizures.
 
Back
Top Bottom