Hello everyone. I am new here.

[Stephen]

Just wanted to say hi. Feeling pretty low at the moments and wanted to commune with those who understand.

Although diagnosed 4 years the simple partials were under control with Keppra. I had oiling of large aneurysm Oct 2010.

Was back at work as a Radiographer (RadTech) (yes...i know)
Just had pipline stent 5 weeks ago. Felt really good till last week when i had a day of multiple seizures. Ended up in hospital. Okay now except emotionally screwed up.
Foolishly thought i had put it all behind me...thought i had won....

Nope.....


I am tears here now...i have never felt so low.

I cannot fathom the mixture of feeling grateful for being a survivor....the feelings of anger at the why me?....and the feelings of guilt at knowin that there are many worse off.

I just wanted to be normal again.

Sorry for unloading.

S

 

[huskymom]

Hi Stephen and welcome. This is the place that you come to so that you never have to say sorry! We all understand how you must feel. While I have never had an aneurysm, I totally understand the emotional feelings that you are having. It is so hard sometimes. But always feel free to come here and post whatever you need to. No judges here, just shoulders for you to lean on. Hope you start to feel better soon!! (((HUGS)))

 

[Nakamova]

Hi Stephen welcome to CWE!

I agree -- in addition to the physical pain of the seizures, there's the very real emotional toll of not knowing: Not knowing why you get them in the first place, and not knowing if/when you will get mugged by them again. Basically, here's a kick in the back, and for Today's Special, it comes with a side of anxiety and depression...

Anyway, as huskymom says, you've come to the right place for awesome support and understanding. Make yourself at home.

Cheers!
Nakamova

 

[Bernard]

Hi Stephen, welcome to the forum. :hello:

My wife was seizure and med free for four years before having a breakthrough seizure post delivery of our first child. It's been a rollercoaster since then (though things are manageable today). The future isn't guaranteed for anyone. Just have to manage it as best we can.

 

[BrandiBrat]

Hi Stephen and welcome to CWE!

Pity parties are very much welcomed here and we all have them....mine was earlier this week as well, after hurting myself during a seizure. It's quite alright and no one judges anyone. Seizures suck

This forum has a wonderful support network complete with tons of educational articles. I hope you begin to feel better soon!

 

[Stephen]

Thanks for making me feel welcome. Its comforting to know that people understand.
I hope i can also contribute.

Stevo.

 

[Cint]

Pity parties are very much welcomed here and we all have them....mine was , after hurting myself during a seizure. It's quite alright and no one judges anyone. Seizures suck

:agree: I didn't have an aneurysm or any head injury, I still ended up with seizures, so many times I also asked, "Why me?" I ended up suffering 2nd and 3rd degree burns from falling in the shower during my 1st TC seizures 30+ years ago. So I had many surgeries because of that injury and because of other injuries due to seizures. I had brain surgery to help control seizures, but it only made them worse. So I definitely had my "Pity Parties" for a number of years afterwards.

Hang in there!

 

[nicholas:)]

I had a stent in and I know how this can worry you for months or years. It's a day at a time.. it's good to get things of your chest (share things), hope you feel better for it

 

[jyearta]

sending hugs to you from down south.:hugs:

 

[jenbayly17]

Stephen
Welcome to the group. :banana: I know it is hard to fathom the idea of being grateful for surviving but also having to wait out the next time your seizures would take place. Believe me I was having the same feelings in the last two months. I had to get my meds changed. But keep talking to us online about your frustrations and hopefully you have someone in your life that you can see or talk to just so the important people in your life get that chance to help you when are feeling low. I know we all like to be strong but use all your resources, friends, family, doctor, pharmacy, and here to help you get through the chaos of the adjusting time you are having to experience until a medicine or different type of treatment can work with your body. Good luck and keep coming back. :hugs:

 

[Zolt]

Hey Stephen,

I agree with Jenbayly17, sounds like your meds may be causing your emotional swings. Are you experiencing a lot of emotional swings since being on Keppra? Talk to you Doc if you think you are. I was experiencing emotional swings on Keppra, both ends of the emotional scale at times.

Stop meditating on the negatives in your life and concentrate on the good parts. Ya, i know easier said than done, but it's all about mind control. You're in control and what you tell yourself is a big factor in what you will believe.

Cheers,
Kornel

 

[Stephen]

Hi guys. Thanks for helping me. You have given me a lot to think about. The biggest thing is that i thought i was alone. I dont know anyone else here like me. That is major.

Stephen

 

[Ann T.]

No solo here!

Stephen,

Hello, and welcome! Here at CWE, you'll never travel alone. Sometimes members and guests may be gone for...awhile (ahem...) like myself...but, we do hopefully & eventually make a point to check back with friends at CWE. I hope everyone has been well and managing their epilepsy conditions well, and finding the assistance they need. I look forward to making new friends at CWE, and it looks like the site is prospering quite well!