Hello from Scotland.
- Thread starter cogent
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What a lovely welcome, thank you. 
I'll try and keep it brief so as not to bore my new friends. I had an accident in 1986 which resulted in an 11 hour operation to reattach my arm. It was successful & I'm grateful to a fantastic surgeon. The length of time under general anaesthetic obviously didn't agree with me as I was 'different' after it, in a few ways but the most noticeable in my head was all these strange daja vu sensations and weird internal feelings. These gradually increased in frequency and severity until in 1994 I was having upwards of 40 of these a day.
Then came my first Tonic Clonic. The strange deja vu stuff continued and got stronger with each day until I was having TC's at least once a week. Went to GP, referred me immediately to neurologist (Epilepsy specialist). Was MRI'd, diagnosed and handed a load of pills (Tegretol Retard) at that time, now Tegretol PR, much nicer name for those pills, I think.
Anyway, the deja vu stuff continued, the TC's reduced and I was then over the next three or four years tried on various other AED's as adjunctive treatment; Lamotrigine, Gabapentin & Vigabatrin. None of these I stuck with as the side effects were destroying any chances I had of getting back to work and being reasonably normal-ish (in my head at least). So I had the Carbamazepine increased to the point of zombie-liver destruction levels.
Also suffer migraine & the outrageous cluster headaches, I guess my head just didn't like that anaesthetic.
LJ I've learned a great deal just reading through the forum, thanks. Mostly about how others feel and deal with it.
Hey Wobblez, I'm in Glasgow where it's a balmy 7° and raining.
Oops, I said I'd keep it brief, sorry.
Thank you all for the lovely welcome, very much appreciated.
I'll try and keep it brief so as not to bore my new friends. I had an accident in 1986 which resulted in an 11 hour operation to reattach my arm. It was successful & I'm grateful to a fantastic surgeon. The length of time under general anaesthetic obviously didn't agree with me as I was 'different' after it, in a few ways but the most noticeable in my head was all these strange daja vu sensations and weird internal feelings. These gradually increased in frequency and severity until in 1994 I was having upwards of 40 of these a day.
Then came my first Tonic Clonic. The strange deja vu stuff continued and got stronger with each day until I was having TC's at least once a week. Went to GP, referred me immediately to neurologist (Epilepsy specialist). Was MRI'd, diagnosed and handed a load of pills (Tegretol Retard) at that time, now Tegretol PR, much nicer name for those pills, I think.
Anyway, the deja vu stuff continued, the TC's reduced and I was then over the next three or four years tried on various other AED's as adjunctive treatment; Lamotrigine, Gabapentin & Vigabatrin. None of these I stuck with as the side effects were destroying any chances I had of getting back to work and being reasonably normal-ish (in my head at least). So I had the Carbamazepine increased to the point of zombie-liver destruction levels.
Also suffer migraine & the outrageous cluster headaches, I guess my head just didn't like that anaesthetic.
LJ I've learned a great deal just reading through the forum, thanks. Mostly about how others feel and deal with it.
Hey Wobblez, I'm in Glasgow where it's a balmy 7° and raining.
Oops, I said I'd keep it brief, sorry.
Thank you all for the lovely welcome, very much appreciated.
Hello Cogent.
A big warm welcome. My Son has E and he has big time déjà vu's and T/C. He is on meds and had gone a long time without a T/C and then they recenlty came back with a vengeance...but true utter joy to my heart, he almost 2 weeks without a T/C, getting back on track
On top of the meds, there is so much MORE to explore, so, so much more, Bernard has a fab book recommendation page, simply great read suggestions here…I love and learned a lot from Epilepsy a New Approach, not a new one but still has what it takes..
http://www.coping-with-epilepsy.com/forums/f40/
Chaz
A big warm welcome. My Son has E and he has big time déjà vu's and T/C. He is on meds and had gone a long time without a T/C and then they recenlty came back with a vengeance...but true utter joy to my heart, he almost 2 weeks without a T/C, getting back on track
On top of the meds, there is so much MORE to explore, so, so much more, Bernard has a fab book recommendation page, simply great read suggestions here…I love and learned a lot from Epilepsy a New Approach, not a new one but still has what it takes..
http://www.coping-with-epilepsy.com/forums/f40/
Chaz
Hi Cogent
So you are from bonney Scotland , Im from Wales its lovely to sort of meet you . My daughter has epilepsy. Lay un diagnosed for around 10 years or so . Then she had her first t/c in her teens , and now been a part of her life in her twentys . New medication, trailing keppra with some good results .She as only been on these tablets for six weeks , so it is early days as yet .
I hope you find all your answers to your questions . I personally found this forum a god send. The information you find and support is sincere.
So you are from bonney Scotland , Im from Wales its lovely to sort of meet you . My daughter has epilepsy. Lay un diagnosed for around 10 years or so . Then she had her first t/c in her teens , and now been a part of her life in her twentys . New medication, trailing keppra with some good results .She as only been on these tablets for six weeks , so it is early days as yet .
I hope you find all your answers to your questions . I personally found this forum a god send. The information you find and support is sincere.