Hi, I'm new here. A little background info:
I've had epilepsy for a while now.. About 6-7 years. And I've done everything the doctors have told me to do.
They say I have "stress induced" epilepsy.. Though before I go into having...A siezure, I don't feel stressed, or usually am I in a stressing environment. Sometimes, most times, I'm just enjoying the day and.. You know.
Yeah.
I was on Tegretol (Carbamazepine) since the start (they just kept bumping how much I took when it didn't seem to work) and recently they've put me on this stuff called Keppra (levetiracetam). I don't take these at the same time, they just switched what I was taking.
Anyways, even with Keppra though, I kept/keep having these things my doctors call "auras". I get sick feeling, I get shakey, as if I'm extremely cold or "twitchy" on certain body parts, massive head aches. And this will last a few minutes to around half hour or so. They kind of always just happen, and then just leave. There's never a feeling of I feel it coming on or when it'll end. And when it does end I feel as if I was awake for a week and have been running miles on miles. Completely drained. Sometimes it pretty much puts me to sleep on how tired I get.
These "auras" have been happening on a weekly basis, to a daily basis, to now a couple times a day. I keep forcing myself to just pushing on.. But I'm starting to get worried. When I talk to my doctor about it she explains that it's just an "aura" and to just let it pass. But I don't like the feeling. When it happens I get this feeling as if the world was ending, a sinking sick feeling.. A feeling I have actually come to very much dislike.
What can I do about this? Is there anything I can do? Or is it something I literally just have to live with?
If I do have to "just deal with it" how can I do it? Will I get used to it? I work at a Grey Hound bus station as a ticket agent, and at the moment, when these happen I have to take a step away from working and sit down somewhere quiet. I can't focus, I feel faint and it's really affecting my work. Is there anything I can do so I can have a living?
I've had epilepsy for a while now.. About 6-7 years. And I've done everything the doctors have told me to do.
They say I have "stress induced" epilepsy.. Though before I go into having...A siezure, I don't feel stressed, or usually am I in a stressing environment. Sometimes, most times, I'm just enjoying the day and.. You know.
Yeah.
I was on Tegretol (Carbamazepine) since the start (they just kept bumping how much I took when it didn't seem to work) and recently they've put me on this stuff called Keppra (levetiracetam). I don't take these at the same time, they just switched what I was taking.
Anyways, even with Keppra though, I kept/keep having these things my doctors call "auras". I get sick feeling, I get shakey, as if I'm extremely cold or "twitchy" on certain body parts, massive head aches. And this will last a few minutes to around half hour or so. They kind of always just happen, and then just leave. There's never a feeling of I feel it coming on or when it'll end. And when it does end I feel as if I was awake for a week and have been running miles on miles. Completely drained. Sometimes it pretty much puts me to sleep on how tired I get.
These "auras" have been happening on a weekly basis, to a daily basis, to now a couple times a day. I keep forcing myself to just pushing on.. But I'm starting to get worried. When I talk to my doctor about it she explains that it's just an "aura" and to just let it pass. But I don't like the feeling. When it happens I get this feeling as if the world was ending, a sinking sick feeling.. A feeling I have actually come to very much dislike.
What can I do about this? Is there anything I can do? Or is it something I literally just have to live with?
If I do have to "just deal with it" how can I do it? Will I get used to it? I work at a Grey Hound bus station as a ticket agent, and at the moment, when these happen I have to take a step away from working and sit down somewhere quiet. I can't focus, I feel faint and it's really affecting my work. Is there anything I can do so I can have a living?
