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Atticus100

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Hi there,

Just signed up to this site and wanted to say hi! Have had a look at various threads on and off for a year or so now and wanted to say what a great resource it really is.

I started having Tonic Clonics about five years ago when I was thirty and have been on various pills since then to try and get in under control. Have been on Keppra and Vimpat for nine months now and thankfully have not had a seizure like that since (whihc is great).

I now however have periods of about ten seconds, twice a day or more where I cannot speak or understand people (a feeling of the brain pwering down). If I do try to speak it comes out as total gibberish! I am fully conscious and know what is sounds like, so obviously choose not to speak while this is happening! What is worse though is every few days these periods last for about four hours. I can carry out any other activities apart from speech, reading or writing.

Does anyone else have any similar experiences or could give any advice? I am waiting to see my neurologist but waiting lists are long!

All the best to everyone,

N
 
Hi Atticus, and welcome to CWE!

The episodes you are having sound like complex partial seizures (where you are conscious, but with impaired awareness or cognitive abilities), and you should definitely let your neuro know about it. Four hours is way too long to be unable to speak properly! Try and convince your neuro to move up your appointment.

While you are waiting to see your neuro, keep a diary of when these episodes happen -- you may be able to pinpoint (and hopefully avoid) stressors that may be triggering them.

Best,
Nakamova
 
Hi, Atticus!

When I'm having trouble speaking, sometimes (not always!) signing a word or phrase will help snap me back. That is sign and not sing, though I'd be curious to see how singing might work! I'm too shy to try that one out.

When it's really bad...well...that's when I have my friends pull out a recorder and imagine all the new funny stories we'll have. Sometimes I just have to sit it out.

Anyway, nice to meet you!
 
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