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Hello I`m tookool1965 I have had EPILEPSY since I was19yrs.old I`m 41 now and pretty much been threw as stuff as I really want to go threw.I`m getting ready to go start my new testing in San Francisco at C.P.M.C AND Looking forward to it the staff seems to actually give a hoot about what they are doing .The test are for R.N.S. RESPONSIVE NEUROSTIMULATOIN SYTSEM ,they are your pretty much basic mri eeg and a meeting with a neurophyscholigist for pre surgury evals.I`ve suffered from tonic clonic ,simple partia& myclonics.usaully I always in a good mood and pretty activeany ways it`s time to pay my rent now.see ya.
tookool1965l
 
Hi TooKool, welcome to the forum.

Is the RNS still in clinical trials? What made you decide to try it?
 
Hi tookool :D Glad to meet you.
It sounds like you're getting ready for some pretty exciting stuff. Wow!

I did that before my surgery last Feb.
The neuropsych testing was difficult for me because I take things was too seriously. Six months after surgery the hospital gave me the exact same testing and I had exactly the same results with a tiny loss of the use of my right fingers/hand. (my testing had just one very brief glance at stuff like that).
Please keep in contact with us here and let us know how you're doing.
 
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