Hello

[JacquieB2]

Hi, I'm Jacquie
When I was a child there were a lot of things that I couldn't do - go on swings, roundabouts, roll down hills etc but it was never really questioned why - it was just accepted in the late 1940's that was just how it was!!
In 1970 I had a nasty car accident and to cut a long story short after experiencing blackouts I was diagnosed as epileptic and prescribed tegretol and tofranol. As time went on these drugs were gradually reduced and in time I was off them completely with no recurrence of symptoms.
However last year it all kicked off again - after a period of extreme stress, I had a MRI and EEG which both came back abnormal, I was found to have a skull base tumour and the EEG showed I was having small seizures - went on to have a sleep deprivation EEG but although still abnormal was unable to provoke a full seizure. The tumour was biopsied and was found to be benign (concern was due to my previously having breast cancer) however inoperable due to it's location. I have been prescribed Gabapentin but recently my neurologist changed my prescription to Topomax - the side effects were absolutely horrendous for me and I have gone back to the Gabapentin. I am now waiting further investigation with a new neurologist.

 

[Endless]

Welcome, Jacquie!

I'm so sorry to hear your seizures are back. And you've really been on the medication-merry-go-round. Me, too. It takes a lot of fooling around sometimes to find the right meds.

Topamax really IS hard to take. I was dumb as a post, slept all the time, horribly depressed, extremely blurry vision, etc. I went off the stuff, too. There are a lot more drugs to choose from these days than there were in the 70's. Everyone reacts differently to the different meds, so you never know till you try them.

Hang in there. I'm hoping the medication will have your seizures under control.

 

[Nakamova]

Hi JacquieB2, welcome!

I hope the new neurologist turns things around for you. Having the right doc can make a huge difference, almost as much as having the right med.

 

[Meetz1064]

Hi Jacquie!

I am glad that you're getting the help that you need! Topomax CAN be a rough drug to take, although I'm one of the people that can handle it (go figure.)

I do hope that the second neurologist will help you get some better answers and peace of mind...and perhaps help you settle the issue with the brain tumor as well.

Welcome to CWE, btw. I'm sure you're going to like it here--the dinner party is in full swing, and there's lot of nooks and crannies for you to check out.

Don't be shy, either--there's plenty of friends to meet, so feel free to chat them up. Kick up your feet, relax, and have fun. I'd give ya some coffee, but I've burnt it AGAIN. *sigh* I'll never learn.........

Take care!

Meetz
:rock:

 

[JacquieB2]

Thank you

Thank you for the welcome, nice to be among people who know all about this silly thing!! I seem to have the feeling that if I ignore it it will go away - have still managed to retain my driving license and am scared that if I go for further investigation I could lose it and for me that would be the end of my world - I live in a small village in the middle of the countryside....would save me a whole load of money though!!! x

 

[huskymom]

Welcome!!

A nice way to start off a Monday morning....meeting someone new! Hang in there.......:hello:

 

[JacquieB2]

Hey!! I have a friend in South Bend - visited her last year - gorgeous part of the world, my friend lives in Granger - thanks for the welcome x

 

[ashlealady]

recently my neurologist changed my prescription to Topomax - the side effects were absolutely horrendous for me and I have gone back to the Gabapentin.

Good to know I wasn't the only one that had such trouble with Topomax. My step-brother was on it and did just fine but it mad me crazy. They sent me back to just my Depekote at the time and my problems went away.