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Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

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sagebrush53

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I am new to this site. I have had 2 brain aneursyms and have develop what the doctor calls partial/ complex seizures. Have not seen a specialist as no insurance. So I am here hoping to learn and get support. My dear husband doesn't seem to understand. We live in a remote area and I'm feeling overwhelmed and unsure of my life now. Thank you for any help.
 
Hi Sagebrush

That is an interesting name. :)
Many people hare here because not many people understand what they are going through or it is hard to talk about with someone who may not understand. If you lurked around and read some posts, I'm sure you've seen how easy it is to talk here and how much there is to learn.

My seizures are controlled, but when I was diagnosed, I was having partial complex seizures as well. It can be a scary and confusing experience.

Welcome to CWE, Sagebrush.
 
Hi Sagebrush--I'm sorry that it doesn't sound like you have the support system you need right now. I'm glad that you found this site, and others who will understand a little more about what you are experiencing. Is the doctor who told you your diagnosis treating you? You will find many knowledgable and caring people here, so please stick around.
 
Hi sagebrush, welcome!

I hope you feel free to explore the forum and ask questions. CWE is a great community with folks who "get it" about seizures. You might ask your doc to explain to your husband exactly what happens during a simple or complex partial seizure. Are you on any medication now? Even without insurance, there should be a way to get you any prescribed medication. This thread may help: http://www.coping-with-epilepsy.com/forums/f23/when-you-cant-afford-medication-1452/
 
Hi Sagebrush. Welcome, stick around and read previous posts and ask questions. I have found everyone here to be helpful and nice. I know what you mean about your husband not understanding. I think if you had others types of seizures it is easier for others to understand. I took my husband to my neuro appointment and he still doesn't get it.
 
I do understand what you said. I was a complete mess when it first happened but have learned from every seizure so understand them better. My husband won't go in with me to doctor and he deals with it by not dealing with it. Was the same way when my first aneurysm ruptured. But I guess in the long run it has made me stronger until I have too much stress and then it's over whelming.
 
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