My nephew was 8 years old when he survived a life threatening episode of dengue fever. It was truly a miracle that he survived. Thank God! He was a 'vegetable' when we brought him home. Over time, he gradually regained his faculties, but not all...he has become a special child. His vision is impaired. There is weakness in his right side and he lost his speech. He also developed "reflex seizures". A dog's bark, a cough or a loud bang could cause a fall, sometimes head first. That is why he is never left alone. Someone is always there to catch him if he falls.
It is fortunate that where we are, it is affordable to get such 'kind people.' He never really underwent extensive therapy because first of all, he is such a hard headed and stubborn boy. I tell you, caring for him brought out the best and the worst in me. Secondly, the expense is not really within our budget. You are lucky you have a health care system that, in a way, can afford you treatments and medications that you need.
He used to take Tegretol to keep him seizure free but when he developed the 'reflex seizures', he was switched to Depakene 500 twice a day. It has helped but he still has to be watched over in case he gets startled, which he still does.
It is consoling to know that we are not alone. Thank you and more power to CWE.
Blossom
It is fortunate that where we are, it is affordable to get such 'kind people.' He never really underwent extensive therapy because first of all, he is such a hard headed and stubborn boy. I tell you, caring for him brought out the best and the worst in me. Secondly, the expense is not really within our budget. You are lucky you have a health care system that, in a way, can afford you treatments and medications that you need.
He used to take Tegretol to keep him seizure free but when he developed the 'reflex seizures', he was switched to Depakene 500 twice a day. It has helped but he still has to be watched over in case he gets startled, which he still does.
It is consoling to know that we are not alone. Thank you and more power to CWE.
Blossom
