LuvMyTwins
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Hello Everyone----
I have had epilepsy since I was 12 (yes, right at puberty). My epilepsy has been basically controlled with a whopping dose of Tegretol XR on a daily basis. My friend seizure has shown up every 18-24 months. I also gave birth (although prematurely) to beautiful twins----they are beautiful, healthy, and far too smart for their own good. And yes, I took Tegretol the entire time----I also pumped so that my children could get the benefit of breast milk.
Recently, I began to deal with a daily bout of nausea. It was difficult. I had every test known to man---including an endoscopy. Come to find out, I had gastritis and the h.pylori bacteria.
So, I was put on the triple antibiotic for the bacteria and have not been the same since. Needless to say, my levels became toxic which led to a very unususal T-C seizure. So unusual that my husband called the ER (never a good move over here). Since then, life has been interesting.
I went to an epilepsy center for a VEEG (5 days with no seizure) to which I was put on Keppra
( that we found didn't work for me (after a month) and I had another T-C that was unusual---back to the ER.
Now, we're back on Tegretol with all of these twitches with a side helping of Lamictal (that's supposed to go up more). Overall, I've gone from being controlled and confident to anxious and scared.
Thank you all so much for your information as it's allowed me to weigh my options in terms of nutrition and health. I'm looking forward to meeting y'all.
I have had epilepsy since I was 12 (yes, right at puberty). My epilepsy has been basically controlled with a whopping dose of Tegretol XR on a daily basis. My friend seizure has shown up every 18-24 months. I also gave birth (although prematurely) to beautiful twins----they are beautiful, healthy, and far too smart for their own good. And yes, I took Tegretol the entire time----I also pumped so that my children could get the benefit of breast milk.
Recently, I began to deal with a daily bout of nausea. It was difficult. I had every test known to man---including an endoscopy. Come to find out, I had gastritis and the h.pylori bacteria.
So, I was put on the triple antibiotic for the bacteria and have not been the same since. Needless to say, my levels became toxic which led to a very unususal T-C seizure. So unusual that my husband called the ER (never a good move over here). Since then, life has been interesting.
I went to an epilepsy center for a VEEG (5 days with no seizure) to which I was put on Keppra
( that we found didn't work for me (after a month) and I had another T-C that was unusual---back to the ER.Now, we're back on Tegretol with all of these twitches with a side helping of Lamictal (that's supposed to go up more). Overall, I've gone from being controlled and confident to anxious and scared.
Thank you all so much for your information as it's allowed me to weigh my options in terms of nutrition and health. I'm looking forward to meeting y'all.
