Hello

[SunshineArtist]

Hi all!
I did things a bit backwards, I posted in the padded room first to deal with a small crisis and NOW I'm introducing myself.Apologies;
I'm 43 years old (for a few more days) and was recently diagnosed with Complex Partial seizures. I didn't realize till reading some of the posts here, that I have been having night seizures since my mid-20's. I always thought them to be some sort of nightmare and never discussed it with anyone. I can't begin to tell you how liberating it was to hear other people have had the same experience!
I have a very arrogant and threatening neurologist presently, who I plan to replace as soon as possible. He told me my EEG and MRI showed I was having Petite Simple seizures but he felt I was faking it. His reasoning was that I seize even though I was taking gabapentin and because I remembered the seizures. Yes, I do remember the first few minutes and the last few minutes but didn't realized till talking to my daughter that there were 20-40 minutes in between that I don't remember.
Anyhow, when he sent his report to my GP, he said I was having Complex Partial Seizures and said nothing about faking anything. This man has really caused me so much anxiety, I dont feel I can even think straight.
So, thats my story so far. I am completly uneducated in all of this but I know I have found the right place, with you, to learn and take charge of my health and healing.
Thank you so much!
Sunshine

 

[carlos.fonke]

After hearing that from my neurologist, I think I would be in the padded room as well.

Welcome, Sunshine! You've chosen a great site.

 

[epileric]

Welcome SunshineArtist

I've had seizures all my life & I used to think that arrogance was a prerequisite of being a neurologist. As I get older I find less & less of them pull attitude with me but some still do. Don't let that get you down,you know enough to find a new one & not take that sort of abusive bahaviour.

 

[JRuner]

Welcome Sunshine Artist, I am in the process of seeing a new Neurologist because the old one was arrogant and annoyed when my primary care provider told me to call him and make sure a med would not increase possible seizure activity. I fired him I like to say, because Epilepsy is serious when I was 3 years old I went Status epilepticus and was technically DEAD No independent heart beat for forty five minutes. I DON"T FAKE SEIZURES!

Unfortunately I don't know what causes mine totally yet but I do know they are real because avoiding what I suspect are triggers and taking a med (Klonopin) from a Psychiatrist of all people seams to be slowing the activity dramatically not totally though!

I would like to meet some of these doctors out behind the barn for a good old whooping!

I only went to technical and community college but this country boy knows how to educate an arrogant yuppie punk!

Hang in there and trust your gut!

John Runer

 

[SunshineArtist]

LOL, thank you so much for your support. I like the idea of firing a doctor, I just planned on running away FAST!
Trying to figure out the triggers can be quite comical. My (grown) kids get a kick out of what I come up with.
The maintenence man was in my backyard
The shower was too cold
I had to cook for all of you
I didn't like that song
McD's gave me coffee instead of espresso
My jeans make my bottom look big
Lol, truth be told, they just happen(in my experience)...but now its kind of fun to find what I can blame it on.

 

[Nakamova]

Well, I see you've got a good sense of humor -- that can go along way in dealing with epilepsy...

 

[Zoofemme]

Welcome agaon Sunshine and good on ya for making the decision to fire that old so and so of a neuro...it isn't their place to try to struongarm their patients. We pay them, not the other way around...if more people really looked at it like that doctors might get their acts together and get rid of their god complexes.

Looking forward to hearing more from you on the forums!

 

[SunshineArtist]

That is so true Zoo. I think the saddest part is that he ruins it for good doctors, theres a mistrust that builds in a patients foundation and I'm sure I will look at the next Dr with a bit of prejudice until a new trust can be established...and that does not benefit either one of us.

Another thing my son made me realize. I have been in such a frenzy about losing my license and proving I'm not faking medically PROVEN seizures, that I haven't even asked how all this affects me physically. I have extensive radiation damage in my abdomen from a bout of cancer, many years ago and I haven't even asked if the convulsions could possibly cause harm or if the stress on my body could trigger a recourance(sp)....or even the most basic question. What does having E actually MEAN?

Hope everyone has a beautiful and blessed day!
Sunshine