Help please!

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eem

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Hi,

Thanks for reading. I had been having seizures for about 4 months. I am trying to figure out what kind they are so I can research it and I get so overwhelmed. I thought maybe you could help. At first, I would get an aura, a feeling of nostalgia for me, and then stare off with my only memory of the seizure being confusion. As soon as I felt the aura I would sit or lay down. I felt like my brain was just totally scrambled. My husband said they would last for about a minute. He would talk to me or wave a hand in front of my face and I would not react at all. Then I would come to and feel very ill. 2 days ago I had one and it was similar but in this one I flailed my arms and had no memory of the event at all. No "feeling scrambled" and it was shorter. Maybe 30-40 seconds. I did still have the same aura.

Are they the same type or seizure? What type is that?

I am on trileptal 750md 2x a day. It was just raised with these most recent events. Any info you have would be greatly appreciated. Thank you for your time. Good luck to you all.
Erin
 
Hi. I know how scary this all can be. I felt the same in the beginning. Very overwhelmed and afraid to read further. It does get easier in time. You are doing the right thing by asking for help. You will see that this eases your mind a bit. I don't want to give the wrong info since I am too new, so I will let the others chime in and explain your seizures. The courage of all of the CWE members helped me to NOT feel so afraid anymore :) I hope you find the same is true for you.
 
Hi eem
It may be complex partial seizures you are having. It certainly sounds like that. I also have auras. I suddenly feel like I have already been in this place or had this conversation and it feels almost repititous though I can't figure put my finger on it. It is almost like have a minute or seconds of a past life experience. Stronger than even everyday normal life and then I don't remember anything else. They come and go so quickly that I do not realize I was unresponsive or lost any time until someone says hey what happened to you, or where did you go. I also feel confused afterwards like I am trying to figure out what is going on around me. In a strange way it almost feels like a time warp because my brain stayed where I last remember and even though only seconds past everyone else move on. I don't have problems with body movements but I say really stupid things that do not make any sense or that have nothing to do with what was being talked about.
 
eem

This is a scary time for you, that I know and as julie wishes has said everybody will try and help you, julie wishes is right giving you the wrong info at this point is a bad idea and to be honest I do not know enough about what is happening to try and tell you but you could try reading up on epilepsy and remember you have to keep a diary of everything that happens to you, of what you do and eat, everything its important you have this information for your doctors, there are some other people here who know a bit more and will help you. Take care for the moment and everybody is here for you
 
Hi fedup
I know about keeping a dairy. I do that now because I read online that it does help your doctor but what about food and drinks I never knew that and would love if you could give me some help. Do I document everything I eat and drink or only on the days I have seizures?
 
Its helpful if you keep track of everything,let me explain I love black peper or any peper - but for some reason I was getting seizures after I went out for a meal, so I wrote down everything I had for the meal - so everytime I went for a meal I had the same thing but I would change one thing - I was lucky the first thing I cut out was salt and pepper and when I went home nothing happened so I knew it was either salt or pepper, now I could tell my doctor and with some tests and a little more, I am allerigic to peeper - catch my drift, diat can help you as well, you might be lacking in some vitimen that you need - like me I need iron so I eat liver (because its high in iron), I have just fiured out last weekend that after forthy years I can no longer drink orange of any kind, I will ask the doctor to do some tests and see what happens and you need to read up on epilepsy - just because something happens to me or anyone else this does not mean it will happen to you.
 
Hi Fedup
That is so neat. I never knew any of that and I am going to start this right away. Thanks so much for the info.
 
I am sorry you are dealing with this, it is terrifying when any seizure problem appears. I am unsure of what kind of seizures they are but I hope I can give you some support. I urge you to have whoever is around you keep a notebook hand or something to write down when, and how long you had your seizures. You should notice a pattern. Try to make this a habit. This is so beneficial because from what I was told it helps the neuro get a better idea of what kind of medication I need and eventually find out the focal point in the brain. Also the fear and overwhelming nature of researching seizures is a tough thing, I actually avoided it. My fiance has done lots of research and found many patterns in my seizures, which has helped so much. I'd suggest having someone help that sees them and is around you a lot with doing a similar task. Fedup is very correct, keeping track of your diet or you lifestyle can really help decrease the seizures. I cut out food with MSG, caffeine, stop smoking and just adopted a much better diet. I am going through a bad spell now but overall the lifestyle changes helped more then my medicine. Find hope when things seem bleak at times and it will carry you through, blessings and prayers for you.
 
Welcome to CWE

Welcome to this wonderful place.

Your current situation is very difficult to accept and deal with. You are in a safe place where you can ask questions and have no fear. You are among friends who will listen and care. I hope that the insight you receive will help you find ways to improve your situation.

All the best,

Tom
 
Sounds like complex partial seizures an/or absence seizures.
I hope things get better for you soon. Do you go to a neurologist regularly?
 
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