Hey There Everyone!

[Screamy]

My name is Laurie I am new here by probably 6 hours and just wanted to say Hi. Perfect description of my seizures. Hope I did not bother anyone by posting this much about them on my first thread! No point to keep things secret or hidden especially when I need new friends who can relate and care instead of being totally alone!Thank You:e:




I have petiteMal seizures and for the longest time this is how they have been. I would receive an Aura with enough time to sit or lay down while my whole left side cramps up. I would still be aware of what was going on around me at the time and I would be able to speak and understand others all while having a seizure, so I was able to explain to anyone around me at the time what was happening to me. I was 13 when I began having these seizures. I am now 29 and over the past year or two they began changing. Now when I have one, sometimes I don't get an aura but if i do it's shorter than before. I then get a terrified look on my face and begin screaming very loud. I sit or lay down as I'm screaming and this usually lasts about 30 seconds to a minute. I am completly incoherent while this is going on. When I stop screaming, it's like I'm asleep and this can last up to a couple minutes. When I come to, I am unable to communicate at all. I am completely unaware of what just happened, what I'm doing, and what's going on around me. I can't understand anything anyone says and am very easily seriously frightened. This state of confusion can last as long as 10 or 15 minutes sometimes. Even when my communication abilities return to the point where I can talk and hear others, it's a few minutes before I can make sense of the words. All in all, from the point to where I have a seizure to the point where I am aware of myself, my surroundings and am able to be self sufficient is on average 10 minutes

 

[Nakamova]

Hi Screamy! Welcome!

Can you think of any particular reason why your seizures started changing? Sometimes there can be a trigger related to changes in your environment or hormones or metabolism. Are you on any meds? Has your doc recommended adjusting the dosage in response to these new seizures? They sound a bit like Complex Partial seizures, but I'll let others chime in on that since I've only had tonic-clonics myself. Hope you feel free to explore the archives and the other forums here.

Best,
Nakamova

 

[Endless]

Hi, Screamy,

Welcome to the forum! I LOVE your screenname. (Or is that a Screamname?)

It isn't unusual for uncontrolled seizures to progress and get worse over time. That includes getting new kinds of seizures or having the seizures change in other ways. This is the reason that most neuros try to get their patients completely seizure-free.

I assume you are under treatment? What meds are you on? What does your neuro say? Maybe it's time for your meds to be adjusted. Your seizures really need to be under control.

 

[KARDSHARQUE]

Hi, and welcome to the sight. I hope it's helpful and you enjoy being part of it.

 

[Screamy]

We cannot think of any reasons, no changes in my life have taken place and I've been on this same Junk long enough now that it cannot cause any major problems. Right now the only thing I really care about is to get a new Doctor who actually cares about a patients feelings instead of reputation, I'm sure stressing over this must be causing some kind of problem. I will be reading up all the different threads to absorb all the get information everyone has on here. Glad I found this place, just wish it was sooner.

 

[ColmanMac]

Hoya Screamy - Good 2 have U on board - look forward 2 lots of banter - rest assured secrecy isn't in remit - just forthrightness with a liberal sprinkle of lunacy!! So ask me NE-thing!
Take care; Col

 

[Screamy]

Thanks for the welcome everyone, much appreciated!!

The Screamname was my husbands Idea, I wanted to use something interesting and as soon as I asked him that is what he came up with, laughed for 3 hours. But thats how my seizures are, scream then cramp up, so, why not!! I am on lamotrigine right now, and treatment wise, I am waiting to have the week long MRI done so we can schedule brain surgery, everytime I adjust drugs I become immune to them, which is sooooo awesome!! My doctor cares about himself and not his patients so after telling him about these changes he seemed to not care. Thank You again Nakamova, endless and Kardsharque!! Hopefully soon I can be considered a friend!

 

[Screamy]

Thank you ColmanMac. No secrecy...Hmmm.. down with that, ask NE-thing eh? Well, keep that in mind! and please tell me everyone here has a good sense of humor!! If not, ya'll won't like me!! And I can leave to go back to my cave.....

 

[Dragongiraffe]

Hello Screamy, I am new here too, about 2 days old by now...god, I'm getting on...! I am a wife of an epileptic, not a sufferer myself. Welcome, and hope to get to know you in time a little better. DGx

 

[Screamy]

Thanks DGx! Everyone here is so friendly, glad I'm not the only newbie! Very easy to get to know me,I do not take offence to anything so ask or tell anything you want, I'm here for anyone, not enough time in a life to worry about petty things!