Hey, y'all!

[JustAnotherName]

Hey, everyone!

I've had a seizure disorder since I was young, though it wasn't really explained to me in-depth by my childhood neurologist. (Weird, I know.) I had my first complex partial in 2010 and my first grand mal (thanks to some missed doses) in October. I've been on Tegretol (400mg twice a day) since I was 6. Since October, I've experienced simple partial and myoclonic jerks, even while taking my medication to a T.

I'm lucky that I've found a GREAT epileptologist basically at random. She's helping me get sorted and has been SO helpful over the past 1.5 months that she's been treating me.

I have been browsing this forum for about a month and just decided to make an account. This forum is wonderful!

I guess I'm just here for support, really. With the new diagnosis (if you can call it that, considering I've taken Tegretol for ages), I definitely am going through some highs and lows in terms of emotions.

 

[Nakamova]

Hi J_A_N, welcome to CWE!

Isn't epilepsy fun? One of the most predictable things about it is that it's... unpredictable. I hope you get a treatment figured out to get your newest symptoms under control.

Best,
Nakamova

 

[jemsister]

Isn't epilepsy fun? One of the most predictable things about it is that it's... unpredictable.

Couldn't have said it better myself! :lol:

Welcome, Just! I am new here too, with partial seizures for the last 15 years. I hope you find the support you need here. =)

 

[JustAnotherName]

Thanks for the welcome, you guys. Everyone here seems really friendly, so I'm sure I'll enjoy the forum. And yes, epilepsy is quite unpredictable! That's life, though, I suppose!