Hey :)

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I'm rhiz, I'm 16 and i'm from the UK and I have myoclonic epilepsy (i've never had a T/C so I guess I'm not too bad off!). I was diagnosed 2 years ago and I've been on lamotrigine ever since with no effect so far :(!
I thought I'd join this forum as I could do with some advice and I find it's nice to talk to other people with epilepsy about my experiences and hear about theirs

so yeah hey :)
 
Hello rhiz and welcome to this group. :p I am also from the UK and new to this site. Was only diagnosed with epilepsy this July - not sure of name/s of seizures I have yet (all new to me). This site is fantastic and so are the people who come on it. I hope you do find the answers you are looking for. People on here will do their very best to answer them. You can also have a good laugh on here too. Have a good rest of the evening. :)
 
Thanks guys :) I find the atmosphere from alot of the threads great already!
I'm hoping I'll be able to help some people too with my extremely small knowledge
 
Howdy rhiz, and welcome to the site!

Lots of good stuff here, information and support both. You can search for specific topics, hangout in the different forums, chat and vent as needed. A lot of great coping advice given here, many voices and perspectives.

Question -- how come you're still on lamotrigine if it's not working for you?

Best,
Nakamova
 
Hey & thanks :)

In answer to the question, who knows :( They keep playing around with my dosages moving it from morning & evening splits to just evening and they're planning on upping to 200mg and messing around with it again but I just get the feeling it's not gonna help myselff
 
rhiz... hello and welcome from me (also a UK'er).

You really should consider a change of meds if lamotrigine is not working for you :( There are some fantastic threads regarding alternatives - knowledge is power!
 
Hi, hello

and ho do you do, rhiz? Welcome to CWE!!

Myoclonics are one of four types of E that I have. Carbatrol takes care of most of my E, but it's Klonopin (Clonazepam) that really helps with my myoclonics. Well, I imagine Carbatrol helps a lot, too, but when I started taking Klonopin, it really got better. I do also take Lamictal, but it hasn't made that much of a difference in regards to the myo's for me. Neither has my Topamax.

I just wanted to stop and say hi. Feel free to check out the Library and the Kitchen to find tons of information...and the Padded Room is great for venting when you need to. Trust me, we've all been thee a time or two...at least.

Take care!

Meetz
:rock:

PS. Have you consdered keeping an E journal, and making any nutritional changes to help your E?
 
TempusFugit said:
rhiz... hello and welcome from me (also a UK'er).

You really should consider a change of meds if lamotrigine is not working for you :( There are some fantastic threads regarding alternatives - knowledge is power!
Click to expand...
thanks :)
I've been recommended Epilim but I'm still a bit unsure of it myself!
Meetz1064 said:
and ho do you do, rhiz? Welcome to CWE!!

Myoclonics are one of four types of E that I have. Carbatrol takes care of most of my E, but it's Klonopin (Clonazepam) that really helps with my myoclonics. Well, I imagine Carbatrol helps a lot, too, but when I started taking Klonopin, it really got better. I do also take Lamictal, but it hasn't made that much of a difference in regards to the myo's for me. Neither has my Topamax.

I just wanted to stop and say hi. Feel free to check out the Library and the Kitchen to find tons of information...and the Padded Room is great for venting when you need to. Trust me, we've all been thee a time or two...at least.

Take care!

Meetz
:rock:

PS. Have you consdered keeping an E journal, and making any nutritional changes to help your E?
Click to expand...
Thanks for the welcome :)
I've been having a bit of a browse at the forums on here on your advice and they've already been a great help :)
Bernard said:
Hi rhiz, welcome to the fourm. :hello:

Maybe this will help: had to remove the link due to my account not allowing me to post the quote link as it is too young!
Click to expand...
Thank you for the welcome :)
I was proactive around a year ago but I found my seizures had stopped so I followed the routines I'd recorded where I'd been seizure free, but alas it came back :( I didn't really think about becoming proactive again and keeping a journal of specific things you mentioned, but I think maybe I should now :) thanks
 
Hi there and welcome to the forum rhiz. I'm pretty new here too. I think you will like it here alot! This is a great place! :D
 
Hi Rhiz
My daughter is 17 and has been dealing with this since she was 14.
We are being proactive, and now Rebecca is med free. There is more control for her now then when she was on meds.

I hope you find some suggestions here that will improve your situation.
 
Thanks moonchild :D

I'm hoping I can become med free when i'm 17 too now i've started trying to be proactive! It's great to know it's worked for your daughter :) Glad to hear too!
Thanks :)
 
:woot:Hey my aunt and I are new 2! Every1 has been so helpful I think you'll raelly like it here!
 
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