I thought it would be polite to introduce myself a little before I started posting elsewhere. 
I'm 32 and have been getting a variety of strange symptoms since my late teens, the most serious of which only occur when I'm sleeping. It took me a long time *and quite a lot of personal research, as I didn't find the doctors particularly helpful* to come round to the idea that I very likely had a form of epilepsy with a somewhat uncommon, hence perhaps difficult to diagnose, combination of symptoms.
I still don't have a formal medical diagnosis, and am unsure whether I want to push for one at the moment due to the negative aspects of having a diagnosis, the fact that it doesn't seem to be getting worse and is currently managable, and also because I hate getting any kind of medical treatment - I'm the kind of person who won't even take a painkiller for toothache!
However, the condition does affect my life, sometimes to a significant extent, and rarely leaves me alone for long. I've also had a lot of weird and often disturbing experiences associated with the condition which are rather hard to explain people who haven't experienced something similar (and I'm not altogether sure I want to even attempt to discuss with them!). I suppose I was looking to share experiences with people who have had similar issues (who are hard to find in everyday life!) and perhaps clarify my own thinking in the process.
For the record, the symptoms I get seem to be consistent with epilepsy which mainly affects the temporal lobes (but which may generalise elsewhere at times) and which only occurs at night (or when very close to sleep). I'm not sure I want to say more right now, as there is probably somewhere in the forum where it would be more appropriate to discuss symptoms in detail, I'm just not sure where it is yet.

I'm 32 and have been getting a variety of strange symptoms since my late teens, the most serious of which only occur when I'm sleeping. It took me a long time *and quite a lot of personal research, as I didn't find the doctors particularly helpful* to come round to the idea that I very likely had a form of epilepsy with a somewhat uncommon, hence perhaps difficult to diagnose, combination of symptoms.
I still don't have a formal medical diagnosis, and am unsure whether I want to push for one at the moment due to the negative aspects of having a diagnosis, the fact that it doesn't seem to be getting worse and is currently managable, and also because I hate getting any kind of medical treatment - I'm the kind of person who won't even take a painkiller for toothache!
However, the condition does affect my life, sometimes to a significant extent, and rarely leaves me alone for long. I've also had a lot of weird and often disturbing experiences associated with the condition which are rather hard to explain people who haven't experienced something similar (and I'm not altogether sure I want to even attempt to discuss with them!). I suppose I was looking to share experiences with people who have had similar issues (who are hard to find in everyday life!) and perhaps clarify my own thinking in the process.
For the record, the symptoms I get seem to be consistent with epilepsy which mainly affects the temporal lobes (but which may generalise elsewhere at times) and which only occurs at night (or when very close to sleep). I'm not sure I want to say more right now, as there is probably somewhere in the forum where it would be more appropriate to discuss symptoms in detail, I'm just not sure where it is yet.
