Hi Everyone!!
- Thread starter Jeannie55
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Welcome to the Coping With Epilepsy Forums
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lovemyladybug
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welcome to CWE ! im sure you'll learn alot here , i still am .... enjoy
Thank you eveyone for the welcome.
Cordero: Yes I have epilepsy, my symptoms started about 15-16 years ago but were never truly diagnosed until last year. I have had one doctor told me it was mental issues, had another that tell me it wasnt epilepsy but a disease in my brain ( but not epilepsy), I finally went to a doctor who sent me to a specialist in Miami, Fl. who put me on a 24/7 EEG and found the true problem, Epilepsy of the Right Temperal Lobe. That was almost a year ago.
As for triggers I dont have any, the seizures just happen when and were they want. The diffrent types have increase and they have gotten worse over the years.
The doctor who claimesd I had a disease in my brain tryed me on many of the other meds for epilepsy and I have had very bad reactions to many of them. At this time I am on Vimpat 100mg 3x a day and it seems to be working pretty good and no depression or rashes.
Cordero: Yes I have epilepsy, my symptoms started about 15-16 years ago but were never truly diagnosed until last year. I have had one doctor told me it was mental issues, had another that tell me it wasnt epilepsy but a disease in my brain ( but not epilepsy), I finally went to a doctor who sent me to a specialist in Miami, Fl. who put me on a 24/7 EEG and found the true problem, Epilepsy of the Right Temperal Lobe. That was almost a year ago.
As for triggers I dont have any, the seizures just happen when and were they want. The diffrent types have increase and they have gotten worse over the years.
The doctor who claimesd I had a disease in my brain tryed me on many of the other meds for epilepsy and I have had very bad reactions to many of them. At this time I am on Vimpat 100mg 3x a day and it seems to be working pretty good and no depression or rashes.
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I feel your 'pain' Jeannie55. I was first diagnosed at 15 with PTSD and put on zoloft, pretty much figured an open and shut case by mental health. I didn't start having TC's until I was 25 and they wouldn't begin to admit what had been going on all those years were simple partials until I was 28. Never needed a psychiatrist, needed a neurologist. Didn't need zoloft, needed AED's. Frustrating to say the least, and life changing as 10 years without the e diagnosis has caused complications. Glad to hear you found someone who knew what they were doing - all the best of luck in the world to you!!
survivor
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Welcome dear friend!
Its good to here that atlast u have a doctor who can understand ur syndrome and illness. We are here to help u anytime and any of ur health related issues. I too had to change many doctors and medicines too. This is a tough path but leads to a point where u definitely come to know that u are much more strong than the world as u can suffer much more and still live. Keep smiling always!!
Its good to here that atlast u have a doctor who can understand ur syndrome and illness. We are here to help u anytime and any of ur health related issues. I too had to change many doctors and medicines too. This is a tough path but leads to a point where u definitely come to know that u are much more strong than the world as u can suffer much more and still live. Keep smiling always!!