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Teanque

Teanque

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My name is Di .... but most of my online friends call me teanque (Tink) it was my clown name.

I am a step-mom of 4 teens & 1 pre-teen, so i constantly feel like i am losing my sanity :)

My birth mother and 2 of my bio-brothers have epilepsy. my mom was diagnosed when she was in her 40s and my brothers when they were teens.

I was just recently diagnosed after i had a tonic seizure during our vacation trip to Florida. back when i was diagnosed we had insurance. the doc did an MRI and a EEG. I had several seizures during the EEG (thanks for the flashing lights Miss nurse lady!!) The doctor put me on Depakote and a few more pills

All the pills together made me a zombie and tired all the time, so the doc weaned me off all but my depakote. Seizures stopped :D PURE HEAVEN!!!

and then the insurance ran out. That was back in 2009. I have been doctor & medicine free for over 2 years now. Some months are good, some not so good. I usually have a tonic seizure around "that time of the month"
but most of the time I just have partials, which doesnt bug me TOO much, just when they happen in public.

I don't like it when people stare at me or make fun of me because of my epilepsy....... or act like I can't do anything on my own anymore. My step-kids dont like me going in public with them, just in case (i dont get that since they also believe that i DONT have epilepsy or seizures and that i am faking it) My family doesnt allow me to hold babies, because i might drop one??

i just wanna say thank You to the wonderful people here. Your stories have made me feel like i am human again, and NOT crazy!!!
 
BTW, this month alone I have had 1 tonic (i think??) and several partials.
at least, I think i had one. i walked out of the store, to my car. next thing i know i am trying to stand back up and have a HUGE dent in my forehead from hitting it on the car. dent has gone away but my forehead is a pretty greenish purple color. LOVELY!!

I am scared to death to drive to work daily, i already lost 1 job because of the seizures. i was working at a portrait studio, had a seizure on the job because my boss kept pushing the flash button as rapidly as she could one day.
my new job isnt dangerous, except for the giant grill they have me work on LOL

used to i had auras or headaches to warn me of an upcoming seizure, but the last few times.... one minute i am walking in a room...the next minute i am on the floor. or like 1 time, i walked into the kitchen...and then 3 hours later I snap back to reality in the laundry room. kids said i was cleaning like crazy LOL had a bruise on my forehead that time to. husband later found a dent on the washing machine. he thinks that might be where i dropped.

idk, i just need somebody to talk to, because as of right now, if i mention it in my house it causes a fight.
 
Teanque said:
I don't like it when people stare at me or make fun of me because of my epilepsy....... or act like I can't do anything on my own anymore. My step-kids dont like me going in public with them, just in case (i dont get that since they also believe that i DONT have epilepsy or seizures and that i am faking it) My family doesnt allow me to hold babies, because i might drop one??
Click to expand...

I don't like it either, when people stare or make fun of us because of epilepsy. It is a BRAIN DISORDER! It can strike anyone at anytime. The step-kids need to be educated on the subject. But in part, they are still growing up up and are totally immature. My kids didn't want to be seen with me either when they lived at home, part of it due to epilepsy, part of it due to growing up.
And I had a few TC seizures in public, so my kids had to deal with it. Now they know what to do in real life situations when they witness others having seizures.
 
Hi, Teanque, and welcome!

You've been going through a lot lately. You are among friends here who understand.
 
thanks guys. so far, this year hasn't been a good epilepsy year. 4 seizures already UGH!!!
 
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