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Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

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leo_grl2089

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My name is Taylor I have been having seizures for about 5 years. I just wanted to see how other people took care of themselves
 
Hi, Taylor.

Welcome! I'm glad you are here.

There are lots of posts in here, and people are constantly sharing info about their seizures and treatments, so you are in the right place.

What kind of seizures do you have? Are you on medication?
 
Welcome Taylor

I'd love to know more about your seizures.

There's tons of info here on what types of seizures everyone & symptoms everyone has.
 
Hi Taylor, welcome to CWE!

There's lots of great info here on dealing with seizures, side effects, neurologists, friends, family... I hope you feel free to explore all the forums and post, chat, or vent as your mood dictates.

Best,
Nakamova
 
Hi Taylor - My daughter is the one that has seizures. Her's began when she was 14. She is now 18. When her seizures began, she started on medication right away. This increased her seizures and made her life spiral out of control. She was having about 6 seizures a month.

After learning about how nutrition can change the seizure episodes, she hasn't had a seizure in about 5 months. It hasn't been a quick change, but a positive one.
 
Hi Taylor,
I am new here too. As difficult as it is not to be scared the best thing is to allow time to get everything sorted...even if it takes a while. Above all, ask family and friends to try to understand how you feel and not to judge your feelings and moods. Ask that you be able to express everything that happens in your own way. We need lots of support as they have no idea what we are going through. Good luck!
 
I got diagnosed a little over two years ago, I am so glad that I found this forum. No one understands E like others that go thru it. You will find compassion, love, understanding and a lot of education here.
jenn
 
Hi Tyler. I got eilepsy about 8 years ago, nobody knows what caused it.

I love this site. You can ask questions and people give you answers, sometimes even get on the internet and find them! I really appericate the people that do that.

You find people who deal with the same things that you go through so you know you are not alone and have someone to talk to about them.
 
Hi Taylor, welcome to CWE. We are all glad to have you here.

This forum was made by Bernard out of love for his wife Stacy. That love permeates throughout the whole forum.
 
Hey Taylor. I found this forum this year and it is so good. I was diagnosed in Feb this year and its really nice to have people to relate to. People are really friendly and help you understand ways to overcome the challenges. :)
 
leo_grl2089 said:
I have grand-mal seizures I am working on meds. The seizures are really bad on my body though
Click to expand...

My daughters seizures have been (grand-mal) Tonic Clonic seizures too.
I found alternative therapies to be helpful. She isn't out of the woods yet, but her body is healing over time.

I do understand, and hope you find something that works for you.
 
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