hi, i jus registered not long ago. dunno where to start lol ummm i have a bad dose of epilepsy, got diagnosed with it when i was 18,had alot of close calls with death,no joke,been on alot of differant medications trying to settle the fits down but nothing works. thing thats weird is the doctors etc have done numerous tests on me, to see what the cause of the siezures are, and the tests results come back perfect. and since am getting older, the fits are getting worse,and lasting longer.not good. don t know what else to write.
hi im new to this site
- Thread starter graham281
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Welcome to the Coping With Epilepsy Forums
Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.
Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!
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Hi graham281, welcome to CWE!
I'm sorry you've been having such a tough time with diagnosis and treatment. Some seizures originate too deep in the brain to register on an EEG or MRI, so that may be what's going on in your case. Even without having an exact cause or diagnosis, there are things you can do. This is a good place to start:
http://www.coping-with-epilepsy.com/forums/f22/proactive-prescription-epilepsy-1254/
Is there an stressor that seems to trigger your seizures? The number one stress for people with seizure disorders is fatigue, but there are many other things can play a role including diet, hydration, illness, and a variety of physical, physiological, and emotional stressors. If you keep a seizure journal, you may be identify and perhaps avoid seizure triggers.
You'll find lots of good company here at CWE. I hope you'll feel free to check out the different forums and threads, and contribute to them as well.
Best,
Nakamova
I'm sorry you've been having such a tough time with diagnosis and treatment. Some seizures originate too deep in the brain to register on an EEG or MRI, so that may be what's going on in your case. Even without having an exact cause or diagnosis, there are things you can do. This is a good place to start:
http://www.coping-with-epilepsy.com/forums/f22/proactive-prescription-epilepsy-1254/
Is there an stressor that seems to trigger your seizures? The number one stress for people with seizure disorders is fatigue, but there are many other things can play a role including diet, hydration, illness, and a variety of physical, physiological, and emotional stressors. If you keep a seizure journal, you may be identify and perhaps avoid seizure triggers.
You'll find lots of good company here at CWE. I hope you'll feel free to check out the different forums and threads, and contribute to them as well.
Best,
Nakamova
huskymom
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Hi and welcome graham281!!
so sorry to hear about your troubles, but you have come to the right place! There are so many members here and all have been through different experiences. There is always someone ready to help as best as they can. Come on in and relax! :hello:
so sorry to hear about your troubles, but you have come to the right place! There are so many members here and all have been through different experiences. There is always someone ready to help as best as they can. Come on in and relax! :hello:
