Hello everyone,
I'm pretty nervous as I've never posted on a forum before! I've been a dirty lurker here at CWE for a long time though, It is my go to resource for anything E related. Well I suppose I should introduce myself, I'm Ceri but most people call me Cez. I was diagnosed with epilpesy at age 5 (I'm now 25) after the doctors finally listened to my mother. Its been a fairly weird ride since, back then it was thought that I was only having complex partials but a few years ago after much discussion I was diagnosed with a very rare second seizure type called myoclonic absences.
With regards to medication I've tried most, usually with pretty devastating side effects, Dilantin made all my teeth fall out (thankfully most were baby teeth, I still have no molars though!) I was part of the trials for Keppra in the UK but it made me a psychopath (I punched though a brick wall, smashing my fingers in the process). I'm allergic to Tegretol, I was on Vigabtrin but had to come off when they found out it made people go blind, I'm currently being weened off Lamictal as it has caused major sleep disturbances, so I havent had a proper nights sleep in 2 years. Lets just say I'm pretty medication sensitive!
Right now though I'm taking the plunge and coming off all meds to assess my seizure frequency, when I was younger that was around 20-50 a day, but as I've aged its seemed to stabalise. However, I will find out by how much soon enough! If anyone reads, thanks for listening to me prattle on, you have no idea how much this wonderful placed has helped me feel not quite so alone 
Thanks again!
I'm pretty nervous as I've never posted on a forum before! I've been a dirty lurker here at CWE for a long time though, It is my go to resource for anything E related. Well I suppose I should introduce myself, I'm Ceri but most people call me Cez. I was diagnosed with epilpesy at age 5 (I'm now 25) after the doctors finally listened to my mother. Its been a fairly weird ride since, back then it was thought that I was only having complex partials but a few years ago after much discussion I was diagnosed with a very rare second seizure type called myoclonic absences.
With regards to medication I've tried most, usually with pretty devastating side effects, Dilantin made all my teeth fall out (thankfully most were baby teeth, I still have no molars though!) I was part of the trials for Keppra in the UK but it made me a psychopath (I punched though a brick wall, smashing my fingers in the process). I'm allergic to Tegretol, I was on Vigabtrin but had to come off when they found out it made people go blind, I'm currently being weened off Lamictal as it has caused major sleep disturbances, so I havent had a proper nights sleep in 2 years. Lets just say I'm pretty medication sensitive!
Right now though I'm taking the plunge and coming off all meds to assess my seizure frequency, when I was younger that was around 20-50 a day, but as I've aged its seemed to stabalise. However, I will find out by how much soon enough! If anyone reads, thanks for listening to me prattle on, you have no idea how much this wonderful placed has helped me feel not quite so alone Thanks again!
