Hi
Guess I'll introduce myself. I'm 23 years old, you may call me Bubble (they/them) and I have been diagnosed with epilepsy as a kid, when I was about 7 or 8 years old. Seizures usually only come when I'm sleeping, which makes coping with daily life fairly easy. There's exceptions to the rule though, like right now, I often get more seizures when I'm in pain, and I've fractured my leg two weeks ago. I also feel that exercise has a huge impact on the amount and intensity of seizures that I get, and whenever I'm injured, I can't exercise properly.
I'm on four medications at the moment, and increasing one of them, since I'd usually only get night-time seizures, I would only take them at night, but now that it's acting up, my doctor prescribed it for mornings as well. It's moments like these when I realize, that I'm incredibly lucky to only go through this at night. Just debating over getting dinner, or waiting if the feeling passes until morning, is such a mind fuck. I'm from Switzerland, so I'm not great with english terminology, but I get the "Aura" thingy 90% of the time, or more. So I know if there's a risk or not, but I don't know how big it is. And I hate asking for help, it's truly not something I'm great at.
I thought I'll come here and look for people who are going through the same, or similar things. I've been raised with the mindset of "Your epilepsy is a different kind from the others", have always been the odd one out or the "difficult case", and somehow I used to think that means I'm not one of you, or don't belong in this kind of community. If I ever say something hurtful, call me out on my bs, it's not my intention to do so.
Guess I'll introduce myself. I'm 23 years old, you may call me Bubble (they/them) and I have been diagnosed with epilepsy as a kid, when I was about 7 or 8 years old. Seizures usually only come when I'm sleeping, which makes coping with daily life fairly easy. There's exceptions to the rule though, like right now, I often get more seizures when I'm in pain, and I've fractured my leg two weeks ago. I also feel that exercise has a huge impact on the amount and intensity of seizures that I get, and whenever I'm injured, I can't exercise properly.
I'm on four medications at the moment, and increasing one of them, since I'd usually only get night-time seizures, I would only take them at night, but now that it's acting up, my doctor prescribed it for mornings as well. It's moments like these when I realize, that I'm incredibly lucky to only go through this at night. Just debating over getting dinner, or waiting if the feeling passes until morning, is such a mind fuck. I'm from Switzerland, so I'm not great with english terminology, but I get the "Aura" thingy 90% of the time, or more. So I know if there's a risk or not, but I don't know how big it is. And I hate asking for help, it's truly not something I'm great at.
I thought I'll come here and look for people who are going through the same, or similar things. I've been raised with the mindset of "Your epilepsy is a different kind from the others", have always been the odd one out or the "difficult case", and somehow I used to think that means I'm not one of you, or don't belong in this kind of community. If I ever say something hurtful, call me out on my bs, it's not my intention to do so.