Hi

Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

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Moonwolf

Moonwolf

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Hello to everyone, just registered. thought that I would a last join in with fellow sufferers.

I am *&^*$) and have had e for 10 years after a bad head injury.
Call it break dancing, always gives people a better idea of what happens and makes it less serious for myself and family. Bit like this :roflmao:

May peace live within your heart,
Dave.
 
Welcome Dave!...

Make yourself at home. There are many here who suffer as you said...many who are into finding out just where they stand...and many trying to find out what options are available now.

In your profile you mention 15 T/C's a month...WOW!...I hope this site can help you find a way to settle that down!

PS. It is good you've found a sense of humor about it all....that is very important IMHO.

Good Luck!
Speber
:rock:
 
Thanks for the greeting.

Well you've got to live with it and the best way I've found is to laugh about it, life goes on.
 
Hi Dave.
My daughter was having around 6 a month and last month we got it down to 2. I hope this month is 0. She has just finished half of her neurofeedback sessions, and I only have positive reports so far.
Hope you find some good ideas here. The lounge has plenty of things to laugh at.
 
:hello: Dave!

Then you can rightfully say I have Epilepsy
but Epilepsy doesn't have me!

;)

Welcome to CWE and make yourself a home,
and feel free to browse around!
 
My thanks for your warm welcomes.

:agree: If you let E take control of you you will cry instead of laughing. Not a way I want to live my life, so no matter how much break dancing, life goes on as close to sanity as possible.

May peace live within your heart,
Dave.
 
Hi Dave, welcome to the forum. :hello:

Have you been evaluated as a surgery candidate? Many people with traumatic brain injuries have scar tissue as focal point(s) for their seizures.

EEG neurofeedback is another option for "retraining the brain" to work around damaged tissue.
 
Hi Bernard,

I think that is a bit of a no go as 2/3 of the right temporal lobe has died. Anyway after knowing that it appears as if Dr's know virtually nothing, I will pass on it.
 
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