PhoenixAngel429
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I know recently a big problem of mine is the fear of having a seizure to the point that I feel like I might but I don't. How do you overcome your fear?
How do you cope with fear of seizures?
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mommys angles
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my way of dealing with it is denial. im afraid to just think about it
MuayThaiFighter
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I try to focus my mind as much as possible when I feel an aura. Lately that hasn't helped, but I just remind myself that I have bad days, and I have good days. Sometimes you just have to ride it out. I hate it, but after enough time the fear started to go away.
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I said in a post a good while earlirer,that it was the fear off having a seizure that was the hardest part.If i got a sore head i would think i was going into a tonic-clonic.But as time goes by it slowly declines and you get days when you wont even think off epilepsy but off course there are others when the days are consumed with it,
I think the main thing is that you try and not let it take it over your life,easier said than done,i know,but we all have to try!-Good Luck!!!
I think the main thing is that you try and not let it take it over your life,easier said than done,i know,but we all have to try!-Good Luck!!!
I know I'm going to sound a little fruity with this advice, but I picked up a good one in yoga the other day.
Sit or lie down (the main thing is to be comfortable) and take a big breath in through your nose. Breath out through your nose and right when you've released as much air as possible, release the anxiety or whatever is bothering you, because that is the perfect time to release burdens.
I felt weird the first couple of breaths, but then it just started working. Now I do it any time I get the fear.
If you have an open mind about this kind of thing, it should work for you. Give it a try anyway, what's the worst that could happen?
Sit or lie down (the main thing is to be comfortable) and take a big breath in through your nose. Breath out through your nose and right when you've released as much air as possible, release the anxiety or whatever is bothering you, because that is the perfect time to release burdens.
I felt weird the first couple of breaths, but then it just started working. Now I do it any time I get the fear.
If you have an open mind about this kind of thing, it should work for you. Give it a try anyway, what's the worst that could happen?
I wish I had some answers for you, cause I would do it myself. My seizures have changed (IN A GOOD WAY) but there are times that the fear of one stops me in my tracks.
It is so true what Neil129 said, there are days I don't think of E. then there are days I don't have a seizure but I don't feel right then the fear of something going to happen.
It is so true what Neil129 said, there are days I don't think of E. then there are days I don't have a seizure but I don't feel right then the fear of something going to happen.
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As Ralph Waldo Emerson once said, "Fear always springs from ignorance." One needs to face the facts, educate themselves on what to do in case you have a seizure in front of others and educate others also.
There have been several times I've had a TC in public and rushed to the ER. Sure I wasn't happy about it. I've also had many CP's in front of others in public. I'm certainly not going to let it control me to the point of never going out in public again. I ask myself, "What is the worse thing that could happen?" I think about it and other than being rushed to the ER again, for me the worst thing would be never coming out of the hospital again.
There have been several times I've had a TC in public and rushed to the ER. Sure I wasn't happy about it. I've also had many CP's in front of others in public. I'm certainly not going to let it control me to the point of never going out in public again. I ask myself, "What is the worse thing that could happen?" I think about it and other than being rushed to the ER again, for me the worst thing would be never coming out of the hospital again.
You have to realize the fact that you and your medication can only do so much to minimize your seizures. The rest is up to luck and fate.
One should only fear that which can be controlled. I do not fear death because I cannot control it. When the time comes, it comes. Same with a seizure. If a seizure is going to happen, then so be it. Thinking about it prevents you from leading a normal life, which is one of the most critical goals for those diagnosed with epilepsy.
One should only fear that which can be controlled. I do not fear death because I cannot control it. When the time comes, it comes. Same with a seizure. If a seizure is going to happen, then so be it. Thinking about it prevents you from leading a normal life, which is one of the most critical goals for those diagnosed with epilepsy.
I've been up all night because I'm having an aura and I feel like I'm going to have a seizure when I go to sleep. 
It's hard, but I try to take my mind off it. OR embrace that what will happen is going to happen whether you worry or not. The latter is better, though. Stress can trigger seizures for me. So, I stress about stressing about seizures, and it causes seizures. Stressful, huh?
By the way, try things like yoga, meditation, etc. It'll help take your mind away from your seizures. If you meditate frequently, you can use short bursts of quick meditation to remove the worry from your mind. A couple years ago, I used to meditate multiple times a day and got to the point where I could clear my mind within a few seconds. It really helps when things ramp up at work/school/life.
It's hard, but I try to take my mind off it. OR embrace that what will happen is going to happen whether you worry or not. The latter is better, though. Stress can trigger seizures for me. So, I stress about stressing about seizures, and it causes seizures. Stressful, huh? By the way, try things like yoga, meditation, etc. It'll help take your mind away from your seizures. If you meditate frequently, you can use short bursts of quick meditation to remove the worry from your mind. A couple years ago, I used to meditate multiple times a day and got to the point where I could clear my mind within a few seconds. It really helps when things ramp up at work/school/life.
I never fear a seizure these days, I used to all the time and was housebound at one point. I keep myself as safe as possible but also do things others do I go swimming but always take a friend or care worker just in case. I travel all over the place to see friends and family but carry a epilepsy card with me with my meds prescription in it so that I can be identified and also have Medical bracelet so I can be identified too. I have epilepsy bed sensor and fall detector at home too so they alert for help if activated but I live a very normal life now in spite if daily partial and absence seizures.
I feel it's those around you and the ignorance if others that scares me more than the seizure itself. Also have had to put precautions in place after being mugged during two tonic clonic seizures
Leanne xxx
I feel it's those around you and the ignorance if others that scares me more than the seizure itself. Also have had to put precautions in place after being mugged during two tonic clonic seizures
Leanne xxx
My fear
Hey I have a fear of seizures as well , I never had one or of course don't have any issue with them . I always panic when there are flashing lights in a movie or in general. I know it's a mental thing but everytime I have a panic attack it's the thought of a seizure. It's silly but sometimes , it's all I think about .
Hey I have a fear of seizures as well , I never had one or of course don't have any issue with them . I always panic when there are flashing lights in a movie or in general. I know it's a mental thing but everytime I have a panic attack it's the thought of a seizure. It's silly but sometimes , it's all I think about .
How?
Thebroman,
I would have to say that you are having panic attacks in which you are fearful of having a seizure. You need to get some counseling to treat the panic attacks. You don't need to treat the fear of seizures. You need to get treatment for the cause of the fear of the seizures and that cause is your panic attacks. Don't try to treat seizures you think you could have. Treat the panic attacks you DO HAVE that bring on this fear! :twocents:
I have had several years of counseling and I can tell you that it can be a life-changer! Don't be fearful of having a counselor. You are showing that you are strong enough to be trying to fix your problem. :clap:
acshuman
Thebroman,
I would have to say that you are having panic attacks in which you are fearful of having a seizure. You need to get some counseling to treat the panic attacks. You don't need to treat the fear of seizures. You need to get treatment for the cause of the fear of the seizures and that cause is your panic attacks. Don't try to treat seizures you think you could have. Treat the panic attacks you DO HAVE that bring on this fear! :twocents:
I have had several years of counseling and I can tell you that it can be a life-changer! Don't be fearful of having a counselor. You are showing that you are strong enough to be trying to fix your problem. :clap:
acshuman
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CQ:)
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I agree about the counselling.
I've been seeing a psychologist for about 18 months now to help with stress, over thinking. My psychologist has helped me alot with my stress,overthinking & some other issues. Even though I've never really had any issues with my epilepsy I do tend to overthink it so she's helped me with that.
I joke that she is scarey because she is so straight to the point & doesn't mess around but I need that sometimes & her methods do work lol.
redravin
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For me it was as simple as having enough of the damn things in public to get to a point where it didn't matter anymore.
There's a certain point were you wake up on the floor and you realize that you will live through the physical and emotional pain, that being afraid all the time just isn't worth it.
Sure when I was in high school I hated the fact that it meant that just about no girl would talk to me because of it but that meant the ones who would were the much finer people.
I certainly hate the pain and the occasional concussion especially now that I've gotten older and it's harder to shake off but I've gotten worse bruises in a mosh pit.
I like the advice given of getting counseling, that's useful for a whole lot of things.
But most of all remember, you are a badass who can ride a lightning storm in your brain.
There are only a handful of us who can say that.
There's a certain point were you wake up on the floor and you realize that you will live through the physical and emotional pain, that being afraid all the time just isn't worth it.
Sure when I was in high school I hated the fact that it meant that just about no girl would talk to me because of it but that meant the ones who would were the much finer people.
I certainly hate the pain and the occasional concussion especially now that I've gotten older and it's harder to shake off but I've gotten worse bruises in a mosh pit.
I like the advice given of getting counseling, that's useful for a whole lot of things.
But most of all remember, you are a badass who can ride a lightning storm in your brain.
There are only a handful of us who can say that.
Hi Thebroman,
Welcome to CWE! I've had seizures for 45 yrs. and when I first started having seizures I didn't like having them around others but I learned it was better to be open and tell others about my epilepsy and since then I've had no problems. I have seizures in public, and I work in a public school and have seizures in front of students and staff but they all understand. Take a look at some of the famous people in the world who have had seizures like Elton John, Danny Glover, Vincent Van gough, Edgar Allen Poe, and Einsteen they didn't let it stop them.
If the flashing lights are bothering you ask your Dr. to do a special e.e.g. on you where they flash different color strobe lights one at a time, this will show if you are photosensitive and if certain colors are bothering you. Wishing you only the best and May God Bless You!
Sue
Welcome to CWE! I've had seizures for 45 yrs. and when I first started having seizures I didn't like having them around others but I learned it was better to be open and tell others about my epilepsy and since then I've had no problems. I have seizures in public, and I work in a public school and have seizures in front of students and staff but they all understand. Take a look at some of the famous people in the world who have had seizures like Elton John, Danny Glover, Vincent Van gough, Edgar Allen Poe, and Einsteen they didn't let it stop them.
If the flashing lights are bothering you ask your Dr. to do a special e.e.g. on you where they flash different color strobe lights one at a time, this will show if you are photosensitive and if certain colors are bothering you. Wishing you only the best and May God Bless You!
Sue