santaclaus
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Guys,
This is Santa, and I am back with a purpose. For those that don't know me, I am 34, and have been a real-bearded Santa for the last six years. I have developed a theory called Santa Economics. I discovered that the image of Santa is being used incorrectly, and if used properly, could generate billions of dollars for charities. This is a factual statement that cannot be argued. The problem I am having is that I love my illness, and believe it is my illness that has allowed me to make this discovery. I used to be a hard line epilepsy advocate, but not any more. Though I still care, my goal now is to get this Santa money to the people where it belongs. I would love for the epilepsy community to benefit from my hard work, but after the way I have been treated, I don't really care anymore. To review:
Last year, after deciding I was too sick to have this information, I checked myself into a hospital, with the idea of explaining what my problem was, and if there was a way this info could go to the right people. I had given up, and didn't really want the responsibility anymore. Unfortunately, these "drs" decided the public has enough money, and for three weeks, was tortured by people not qualified. I am scared how that incident effected me, and I no longer look at Santa the same way. Now, it is all about money, and unfortunately, the purity to what I did with Santa is long gone. Its sad and sucks, but I am trying to make the best of it.
I also had a run in with the EFA. Though I am not a fan, I tried contacting them because I know this information could help the e-community. Amazingly, they told me that people would rather suffer from seizures than take any money from Santa because Santa is way too offensive for people with seizures. ((sigh)) Is this how everyone thinks? I mean, back in the day when my seizures were active, I used to beg God to kill me, and would have accepted help from anyone. Now I am being told the e-community is too good to accept this money from an image that means "unlimited giving". My question is if you guys find Santa too offensive, what other groups would you resist in helping you?
What bothered me the most is that this is still my illness. I thought back to when I was a kid. Did the EFA have information that could have helped me, but decided, on their own, that I would not have liked the help that was being offered?
If anyone cares, I would love to show you what I have learned, what I have worked hard for, and how it could have a positive effect on the e-community. Right now, you had a person who never had seizures and is getting a paycheck off of our illness decide this money is not something you guys would be interested in. I have spent the last six years busting my ass for the epilepsy community, so to say I was a little pissed and angry is an understatement. I am no longer going to beg to help, and unlike these people I have dealt with at the EFA, I don't care about award dinners. My focus is on the illness, and improving the lives of people with it. I know this might sound like a horrible thing, and I am sure many of you would like to thank the EFA for not allowing me to give this money to you guys. But it just makes no sense how an org could beg for money from sick people, and then choose who is allowed to help and who isn't. If I am really some bad guy, fine. Don't work with me. But don't you think somebody should find out if the claims I am making are true? LOL!! But I guess that is the thing. With this illness, it is easy to pass people off as being crazy and not listen to them.
I am totally disgusted.
This is Santa, and I am back with a purpose. For those that don't know me, I am 34, and have been a real-bearded Santa for the last six years. I have developed a theory called Santa Economics. I discovered that the image of Santa is being used incorrectly, and if used properly, could generate billions of dollars for charities. This is a factual statement that cannot be argued. The problem I am having is that I love my illness, and believe it is my illness that has allowed me to make this discovery. I used to be a hard line epilepsy advocate, but not any more. Though I still care, my goal now is to get this Santa money to the people where it belongs. I would love for the epilepsy community to benefit from my hard work, but after the way I have been treated, I don't really care anymore. To review:
Last year, after deciding I was too sick to have this information, I checked myself into a hospital, with the idea of explaining what my problem was, and if there was a way this info could go to the right people. I had given up, and didn't really want the responsibility anymore. Unfortunately, these "drs" decided the public has enough money, and for three weeks, was tortured by people not qualified. I am scared how that incident effected me, and I no longer look at Santa the same way. Now, it is all about money, and unfortunately, the purity to what I did with Santa is long gone. Its sad and sucks, but I am trying to make the best of it.
I also had a run in with the EFA. Though I am not a fan, I tried contacting them because I know this information could help the e-community. Amazingly, they told me that people would rather suffer from seizures than take any money from Santa because Santa is way too offensive for people with seizures. ((sigh)) Is this how everyone thinks? I mean, back in the day when my seizures were active, I used to beg God to kill me, and would have accepted help from anyone. Now I am being told the e-community is too good to accept this money from an image that means "unlimited giving". My question is if you guys find Santa too offensive, what other groups would you resist in helping you?
What bothered me the most is that this is still my illness. I thought back to when I was a kid. Did the EFA have information that could have helped me, but decided, on their own, that I would not have liked the help that was being offered?
If anyone cares, I would love to show you what I have learned, what I have worked hard for, and how it could have a positive effect on the e-community. Right now, you had a person who never had seizures and is getting a paycheck off of our illness decide this money is not something you guys would be interested in. I have spent the last six years busting my ass for the epilepsy community, so to say I was a little pissed and angry is an understatement. I am no longer going to beg to help, and unlike these people I have dealt with at the EFA, I don't care about award dinners. My focus is on the illness, and improving the lives of people with it. I know this might sound like a horrible thing, and I am sure many of you would like to thank the EFA for not allowing me to give this money to you guys. But it just makes no sense how an org could beg for money from sick people, and then choose who is allowed to help and who isn't. If I am really some bad guy, fine. Don't work with me. But don't you think somebody should find out if the claims I am making are true? LOL!! But I guess that is the thing. With this illness, it is easy to pass people off as being crazy and not listen to them.
I am totally disgusted.
