:soap:Over a year ago I was asked if I had siezures and I said no not that I am aware of. But it was swore on two seperate occassions I had siezures in my sleep. Well now my daughter and my other half are swearing I am having siezures too. So much that my other half went to the dr. with me to tell the dr his self that I have them and the dr. is now sending me to the neurologist. Great. I don't talk about things going on with me because I don't want people to think I am nuts or crazy. Kind of like I have deja vu, bouts of headaches, my face goes numb on one side occassionally and I have ringing in my left ear once in a while. I smell rubber burning or cotton candy sometimes, I also hear voices that aren't there sometimes, I get a little shaky in the hands. I can't go into a room of Christmas trees with lights because I feel like I have a overwhelming fear or doom or something. It's the same way with flashing police or ambulance or any other light fashing in the dark. My memory sucks and sometimes people say things and I don't know what they said because it sounded a lot like garble or jumbled words or such. So I think I am losing it. I read some on epilepsy and siezures and was quite shocked that I seem to have a lot of symmptoms and then on top of it I have to wonder if my panic attacks weren't panic attacks and what if all this time theyve been treating me for the wrong stupid thing. I am nervous and scared and a bit disturbed and I kind of feel crazy.
I feel crazy
- Thread starter tnicol78
- Start date
Welcome to the Coping With Epilepsy Forums
Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.
Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!
BrandiBrat
Stalwart
- Messages
- 596
- Reaction score
- 0
- Points
- 91
Hi and welcome to CWE! Don't worry....you're not going crazy. We have all felt the same exact way on MANY occasions! Whether or not you have Epilepsy, you need to find out what's going on so it's good that your partner went with you to talk to the doc. But, from what you are describing it does sound a little suspicious. Try to take it slowly, if you can and know that if you have epilepsy it can be controlled by medications and lifestyle management. Feel free to ask questions, poke around the forum, and make yourself at home! 
- Messages
- 3,548
- Reaction score
- 96
- Points
- 213
tnicol78
Its easy to feel crazy but the truth is you are not crazy just normal. Its good your other half went with you to the doctor and told him what he had seen so best of luck with the neurologist. There is no need to be scared, you can do nothing about the future, what will be will be. Until then sit back with a cup of tea and try relaxing a little, not easy I know but give it a go. Welcome to C.W.E. and ask all the questions you want.
Its easy to feel crazy but the truth is you are not crazy just normal. Its good your other half went with you to the doctor and told him what he had seen so best of luck with the neurologist. There is no need to be scared, you can do nothing about the future, what will be will be. Until then sit back with a cup of tea and try relaxing a little, not easy I know but give it a go. Welcome to C.W.E. and ask all the questions you want.
holly
New
- Messages
- 204
- Reaction score
- 0
- Points
- 0
hey and welcome!!!, you are not going crazy ik promise you, i honestly thought i was loosing it when i joined here too, only a few weeks back, realising that your odness may infact be a condition is not easy to swollow im still finding it hard also just realising my symptoms may infact be epilepsy and that i hve had it a far back as i can remember, but im going to plead with you to try taking it step by step were here to share this new page with you! thin of it like this, you had it before you knew what 'it' is andyou will cope with it better whn you know for sure! good luck and keep us posted!
Well I am not crazy. When I explain or try to explain things I feel bad I think I wonder if they're going to put me in a nut house. My grandfather had epilepsy but my aunt worried about the side of my face going numb she said that sounds like a stroke. I'm 34 I hope not. My fingers go numb too sometimes like right now and I hate it cuz it feels funny when I type. Maybe I just need more exercise or something I stopped smoking thirty days ago I don't know. I know my neurology appt is 10-10. I do greatly appreciate the input and support and I want to thank yaw for responding
- Messages
- 17,355
- Reaction score
- 756
- Points
- 263
Hi tnicol78, welcome!
In preparation for your neurology appointment write down all the unusual sensations you've been experiencing, even if you're not sure that they're seizure related. The facial numbness and the tingling you are also seizures symptoms, so less likely to be related to lack of exercise.
Everybody has a seizure threshold. People with epilepsy just have low seizure thresholds. This means that they are more vulnerable to different kinds of stresses that can "push them over the threshold" and cause a seizure. While stopping smoking is terrific (and ultimately a good idea for someone with a seizure disorder), the process can stress the system, and may have played a role in triggering some of your symptoms. If you keep a seizure/symptom diary, it can help you identify other triggers that may be playing a role as well.
While some people are misdiagnosed with mental health issues when they are actually suffering from seizures, I don't think you need to worry about this possibility. What you describe are "classic" simple partial seizure symptoms. That, plus your family history, plus your partner's eyewitness descriptions should make an epilepsy diagnosis a "no-brainer" for your neurologist.
In preparation for your neurology appointment write down all the unusual sensations you've been experiencing, even if you're not sure that they're seizure related. The facial numbness and the tingling you are also seizures symptoms, so less likely to be related to lack of exercise.
Everybody has a seizure threshold. People with epilepsy just have low seizure thresholds. This means that they are more vulnerable to different kinds of stresses that can "push them over the threshold" and cause a seizure. While stopping smoking is terrific (and ultimately a good idea for someone with a seizure disorder), the process can stress the system, and may have played a role in triggering some of your symptoms. If you keep a seizure/symptom diary, it can help you identify other triggers that may be playing a role as well.
Thank you nakamova. These symptoms were there before I stopped. Sometimes I am not so sure without the issues I'm having I could've quit smoking a lot of my day is gone because I just am here sometimes and sometimes I'm not. Scary huh? Imagine getting into the car and knowing you went from point a to point b back to point a and knowing you went to these places but you're not sure how. Maybe that's a bad description I'm not real good at my descriptions just know how I feel sometimes. I am writing things down and I am a little nervous.
- Messages
- 5,979
- Reaction score
- 989
- Points
- 268
If you're crazy then we all are too! And I don't think I'm crazy (most of the time at least - lol)
If you get put into a nut house tnicol78 then you better get a room for two because I'll be there with you!
Many of the things that you described are things that happened to me before and during a seizure.
It's really good that your other half realized what was going on and is helping you through it. Many people without epilepsy don't understand it until you have to tell them what's happening. Even then they might not understand it.
I was diagnosed with epilepsy a year before my husband and I started dating. We pretty much learned about it together because I didn't know too much about what was going on. I think he tends to know more about it than I do now however. He actually sees me have the seizures and knows what I do during them and after. He's able to answer more of the questions that the neuro has than I am. Having someone around who is supportive helps ALOT.
If you get put into a nut house tnicol78 then you better get a room for two because I'll be there with you!
Many of the things that you described are things that happened to me before and during a seizure.
It's really good that your other half realized what was going on and is helping you through it. Many people without epilepsy don't understand it until you have to tell them what's happening. Even then they might not understand it.
I was diagnosed with epilepsy a year before my husband and I started dating. We pretty much learned about it together because I didn't know too much about what was going on. I think he tends to know more about it than I do now however. He actually sees me have the seizures and knows what I do during them and after. He's able to answer more of the questions that the neuro has than I am. Having someone around who is supportive helps ALOT.
Well reading the forums I feel like maybe I've had these for a long to,e just no one has thought about it. I'm a lot like many people I thought seizures were collapsing and grand mal seizures. I used to have episodes now and then but now everything is more and more and added stuff like lately ringing in the ears memory, I was having a conversation with the counselor and talking talking and then suddenly forgot' could not recall the conversation I know I was trying to make a point but it was gone. Driving getting in my car getting half way to town and thinking wait where am I going and why am I going. Shaking and jerking in my right arm sometimes shaking in both hands and it all most always starts with a tingly sensation or something like that and no matter how hard I try not to go through these I can't control it. I'm glad really glad I found this because my poor daughter doesn't know what to do but she worries. My better half is wonderfully supportive. He worries about me a lot and he is a blessing. He knows I go to the Dr to talk to him about stuff and once again what am I here for? I laughed at myself reading on thread because I remembered the day I was waiting for a call from the Dr office and four times I had to call this lady back because. I had given her my hubbys phone number. And I told him honey I give her my number I don't know why she's getting your phone some thing is wrong with the cell phone. Or I'll upset and start getting on to one of my kids and think wait what did you do to get into trouble? I always forget why I ground them of course that works out to their benefit unless dad knows why they got in trouble. I noticed too another thing is if there is a lot of people talking at once it starts sounding like a bunch of garble like blah blah blah then what did I say, um um give me a minute. I had a lot of this stuff when I was younger but I didn't think much of it until things began happening daily and I get told some things like siezures in my sleep and I think if I were pinning down triggers one would deffinately be stress and the other flash Iights or too many lights like Christmas tree lights everywhere
- Messages
- 5,979
- Reaction score
- 989
- Points
- 268
When most people hear 'seizure' they think it means that you fall to the ground and start shaking like crazy. They don't know that there are several different types.
Several times when I've told people that I have epilepsy they usually think that it means I have grand mals. I have to explain to them what I do when I have a seizure and they are surprised when I tell them what my seizures are like.