I think I have been very stupid.

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Spooks81

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As my introduction post, (hello everyone).
I will lay out the vastness of my stupidity.
I am a 34 year old woman and I started having grand mal sezuires new years day 2003.

I fought it hard, I refused to take meds or change my lifestyle so as you can imagine my sezuires got progressively worse.

There were two things that guaranteed me a sezuire (not everytime but when I had a sezuire usually one but more often both where involved), alcohol and tiredness.

That all changed about 6 years ago, I started having back to back sezuires, I ended up on hospital being told off by a very disbelieving doctor that I had gone for years unmedicated.
He put me on a low level of topirmate (because of my weight apparently).

After this I had one sezuire, they up the meds and I have been sezuire free since.
I changed meds about 3 years ago and now on keppra because of topimax side effects.

So why am I stupid?

One of the changes I made as well as going on meds was to cut out booze almost entirely for about 2 years, then I started having small amounts. Small = 1 or 2 glasses of wine.
It was all going great, I could have a few drinks and not affect my sezuire threshold.

I also suffered from major anxiety and panic, alcohol was really rubbish for that too so I mostly steered clear.

I worked through my anxiety stuff, and suddenly drinking wasn't so much of an issue, I had been sezuire free for 4 or so years and I was finally letting myself believe that I could be sezuire free (dare I hope permanently).
I finally let go of some of the fear.

With this came a renewed interest in my social life and this has involved alcohol. My one to two small ones became 2-4 large wines, I was now drinking a fair amount and regularly at least once a week.

Then I moved in with my new house mate and my alcohol consumption has gone through the roof, my current poison in rum and last night I drank a little over half a bottle by myself, I would say that is the most alcohol I have had since I cleaned up my act and I am lying here in bed cursing my foolishness.

I don't know why on earth I would risk being sezuire free, like that.
I was having fun, and was in someone's house so free pouring rather than measured shots, so I guess it is easy done but I am feeling pretty stupid and more than a little bit worried.

With the too much booze comes the lack of sleep, waking up early because of hangover.

So now I am on here basically waiting to see if I have a sezuire and deciding on whether I need to vow to stick too 1 or 2 or stop drinking all together as it isn't worth it.
 
Stop drinking all together, besides the seizure issue you shouldn't drink while taking medication. If you have a good thing going being seizure free why mess with it. I'm on a fairly low dose with only one type of pill seizure free and think why don't I try no meds and then I think back to how bad my seizure was. I then said to myself "don't mess with it, stay seizure free! "

Sent from my SM-T350 using Tapatalk
 
Spooks, since you are on here posting I am getting the feeling you already know the answer to your own question. You know what you need to do.

Giving up anything you enjoy isn't fun at the best of times, but you can do it.
 
Hi Spooks,
Welcome to CWE. Take my word you need to stop drinking all together especially since you are on seizure meds. Take my word you will feel much better when you stop the drinking and it may reduce if not stop all the seizures. I wish you only the best of luck and May God Bless You!

Sue
 
Hi, Spooks81 and welcome to CWE!

Feeling like we have been "stupid" in our decisions at times is all part of being human so for that reason don't be too hard on yourself.

Many people here can tolerate small amounts of alcohol with no affect on their seizure threshold as you discovered when you were drinking 1-2 small glasses of wine once per week, so if it is something you enjoy there may be no need to give it up entirely. Another way to enjoy a bit of alcohol and still feel "part of the gang" is to mix it with a tasteless and clear carbonated beverage such as soda water. However, if even small amounts of alcohol is bound to lead you back down the path of drinking more and more along with getting insufficient and/or irregular sleep, then perhaps the best decision may be what the others above are suggesting: give up alcohol entirely.
 
Since you started having TC (grand mal) seizures back in 2003, I'd say give up alcohol altogether. Perhaps if you only had SP or CP seizures, then I'd say enjoy a drink every now and then, but not if you're having TCs. They can be life-altering and consuming alcohol will only exacerbate the problem. Plus, more TC seizures bring on more fear and the fears bring on more anxiety, etc.

https://www.drugs.com/food-interactions/levetiracetam,keppra.html
Alcohol can increase the nervous system side effects of levETIRAcetam such as dizziness, drowsiness, and difficulty concentrating. Some people may also experience impairment in thinking and judgment. You should avoid or limit the use of alcohol while being treated with levETIRAcetam.

I am speaking because I have CP and TC seizures and I take Topamax and Keppra.
 
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I relate to a lot of this. I had a couple of seizures in my teens, didn't get medicated and then carried on as normal. Then after a wedding party last year, 6 years since my last seizure, I had a grand mal out of the blue. I had drunk heavily in those six years so didn't think there was connection but saw an epileptologist and he prescribed me lamotrigine. I have an anxiety disorder and hate anything medical, especially medications, so haven't taken them. I've had a few petit mals; once every two months or so, and each one I can relate it to having had a drink the night before. I've now made the decision to stop drinking, because like you it wreaks havoc with my anxiety levels, I spend the next day feeling like crap and it's just not worth it. I'm not taking anything for the anxiety either as most anxiety meds can affect seizure threshold and I just don't want to open up that beast.

It's really tough, I can totally relate. The anxiety of thinking "will I have a seizure?" Is often worse than actually having one in most cases. I'm still not on meds, but that's because at the moment I do have an aura when a seizure is about to come, and it's pretty long. I've heard too many stories of people still having seizures after taking meds but having no auras, and I don't want to lose that. Until it comes to a point where it's an absolute necessity I can't do it. I've also been on a gluten free diet for the past three weeks, I've always had stomach issues and there has been research on a connection between epilepsy and gluten intolerance, I figured it can't hurt to try it. It definitely seems to be helping, it's even seeming to bring down my anxiety levels which is a godsend.
 
You are not stupid! Somehow typing this out once doesn't do the statement justice. You are not stupid! Making mistakes is part of being human. As someone in healthcare I can tell you that most people have not even been as disciplined as you in making healthy life changes. While you have been drinking for a bit, it sounds like there was only one recent incident in which you drank to high excess. There is a lot of great responses here. Choose the one that resonates the most with you in terms of how to proceed with your alcohol consumption.
 
Welcome Spooks81,
I too can relate. Alcohol is a bad thing for US! Don't beat yourself up but do listen to your body. It is very difficult to not partake of alcohol, especially in a social situation. But like someone said above, dilute it or even drink non-alcoholic beverage.
We have to take care of ourselves cause no one else will!
Good Luck!
M
 
You CAN Be Social Without Drinking Alcohol!

Spook,
I have never consumed alcohol. I have been able to do this because I was able to conceal that I wasn't drinking.
If I am at a party I try to get a few cans of coke in with out being noticed. That way I can pour myself a glass of soda and nobody knows the difference as long as I keep that glass for myself and don't let anyone else drink from it. Any type of liquor that is mixed with Coke or OJ is not going to be noticeable so if you drink the mix straight the other people won't know that you aren't drinking.
You may have to act like you are getting somewhat loosened up after a few drinks but that is not hard to do.
If someone ever asks you if you do drink at parties just tell them the truth. You don't need to drink to be a social person! Many of the people who are drinking just want to see other people act as dumb as they do, so they push the others to drink more and more. You are showing that you don't need alcohol to feel good like they do. If they have a problem with you not drinking they are just mad that someone is going to see them do all of the dumb stuff that they think is funny when they are drunk! :roflmao:

ACsHuman
 
Hmm, I find that very interesting, (drinking while on meds) b/c I get totally baked on three beers.
I've been on epilepsy meds for 39 yrs. and maybe this is why seizure activity is more prevalent when you drink.

Randy
 
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