Hi I'm Sarah. I was diagnosed with epilepsy not long ago. I have had about 6 since March I think. Of course all the normal tests came back "normal" but I was never tested while I was seizing. I have had migrains for as long as I can remember and there seems to be an aura before a seizure but why now? Why be out of the blue? I am turning 30 next month and of course no insurance lol, so I am looking for help anywhere I can. Thank you
I'm new and trying to see what's wrong with me...
- Thread starter say.tink2
- Start date
Welcome to the Coping With Epilepsy Forums
Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.
Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!
RobinN
Super Mom
- Messages
- 7,835
- Reaction score
- 7
- Points
- 163
Hi Sarah - Welcome to CWE
Migraine and seizures are now classified in the same family. My daughter has had seizures and I suffered from migraine for 30+ yrs. I haven't had a migraine in over 6 yrs now. A doctor suggested that I take magnesium, and it seems to have done the trick.
We also manage my daughters seizures naturally. She tried 4 different meds but they had terrible side effects and made her seizures worse. No we manage it with nutrition and supplements.
You can request a VEEG to see if you have a seizure, but if you are not having them daily it will be rare that one will be captured.
Have you considered making nutritional changes to see if there is an improvement in your seizure threshold?
Migraine and seizures are now classified in the same family. My daughter has had seizures and I suffered from migraine for 30+ yrs. I haven't had a migraine in over 6 yrs now. A doctor suggested that I take magnesium, and it seems to have done the trick.
We also manage my daughters seizures naturally. She tried 4 different meds but they had terrible side effects and made her seizures worse. No we manage it with nutrition and supplements.
You can request a VEEG to see if you have a seizure, but if you are not having them daily it will be rare that one will be captured.
Have you considered making nutritional changes to see if there is an improvement in your seizure threshold?
thank you
Thank you and yes at this point I'm ready to try anything. I just started having the seizures and I've had the migraines my whole life. I'm on Keppra and have been on so many other things that I don't want to take all day. lol I can't seem to get anyone to listen. I have tremmors all day, memory loss, confusion, speach problem, but any test comes back "normal". My two kids are afraid to be home alone with me now. Any advice would be great.
Thank you and yes at this point I'm ready to try anything. I just started having the seizures and I've had the migraines my whole life. I'm on Keppra and have been on so many other things that I don't want to take all day. lol I can't seem to get anyone to listen. I have tremmors all day, memory loss, confusion, speach problem, but any test comes back "normal". My two kids are afraid to be home alone with me now. Any advice would be great.
Bluesbrkr
New
- Messages
- 77
- Reaction score
- 0
- Points
- 0
Hi Sarah,
I know how you feel.. I've had migraines for many years. I was just diagnosed with epilepsy about a year and a half ago, so it's fairly new to me as well. I've had tons of tests... MRI, EEG, Video EEG, MEG... but everything comes back normal. They have no idea what is causing them, but they are under control, so at least that is good...
I have the memory loss, confusion, often can't come up with words when talking, exhaustion all day, some dizziness. all the loveliness that goes with the medications..
As for the kids, the best thing you can do in my humble opinion, is to educate them as much as you can, and reassure them that mom is ok, and they don't have to worry. I had to do that with my kids. We have had several talks about Dad's condition, what happens, what causes it, etc.. My youngest 2 were 6 and 8 when this started, and have done really well with it.
I would definitely talk to my doctor about the tremors and speech issues and other probs... maybe they can find I better medication for you. it sucks switching meds and trying to find the right ones, but it's better than having to live with those issues.
It has definitely been great for me to be on this site and find answers and share with other people who not only will listen, but really understand what you are going through. I often feel the "why me, why now... why do I have to take these stupid meds every day... " and it has been comforting and rather therapeutic to know I'm not alone.
I hope things get better for you. Keep your head up and know there are others out here to listen and help.
I know how you feel.. I've had migraines for many years. I was just diagnosed with epilepsy about a year and a half ago, so it's fairly new to me as well. I've had tons of tests... MRI, EEG, Video EEG, MEG... but everything comes back normal. They have no idea what is causing them, but they are under control, so at least that is good...
I have the memory loss, confusion, often can't come up with words when talking, exhaustion all day, some dizziness. all the loveliness that goes with the medications..
As for the kids, the best thing you can do in my humble opinion, is to educate them as much as you can, and reassure them that mom is ok, and they don't have to worry. I had to do that with my kids. We have had several talks about Dad's condition, what happens, what causes it, etc.. My youngest 2 were 6 and 8 when this started, and have done really well with it.
I would definitely talk to my doctor about the tremors and speech issues and other probs... maybe they can find I better medication for you. it sucks switching meds and trying to find the right ones, but it's better than having to live with those issues.
It has definitely been great for me to be on this site and find answers and share with other people who not only will listen, but really understand what you are going through. I often feel the "why me, why now... why do I have to take these stupid meds every day... " and it has been comforting and rather therapeutic to know I'm not alone.
I hope things get better for you. Keep your head up and know there are others out here to listen and help.