I'm new to the site, I need some answers,,, im getting frustrated

[Kris]

I'm 16 years old,
At 4years old, I had my last known seizure. They thought it was a febrial seizure, im starting to question that. Last month, unexpectedly I had taken a seizure that lasted 3minutes. There was little warning what so ever. About 20minutes later a ambulance came. I was checked out and sent back home. A week after, I still felt drained, and my heart beats didn't seem right. I was hospitalized for 9days. Went through numerous tests.... but nothing shows. In the hospital I had took another seizure in my sleep. No one was around, I woke up drained and confused. Of as last night another one hit. But I felt something coming hours in advance, I couldn't stand another minutes at school, I was yet completely drained of any energy I had remaining. As of that night I took another seizure in my sleep. Like all my other seizures it felt like a dream. I could see myself in another view of a person, but they did nothing, just stared, It feels like every inch of my body is weak. I'm looking for some guidance or advance, or any tips of some sort. Thanks again

Oh, and I also have no apatite what so ever after my seizures. It will last days where I fell full

 

[Nakamova]

Hi Kris, welcome to CWE!

I'm so sorry that you're going through all this. You definitely need some answers. I think you should see a neurologist/epileptologist to get further testing done. It sounds like you are having nocturnal seizures. Is there someone who can observe your seizures? Are your seizures tonic-clonics (i.e. with convulsions and loss of consciousness)? There are also other kinds of seizures (called absence, simple partial, and complex partial) that you may be experiencing as well. Write down everything that's been going on -- it will be helpful when you see a neurologist. Have you been placed on any medication? If so, write that down too.

The loss of appetite is a normal post-seizure thing, but it's important that you try to eat a little and drink water to stay hydrated.

You're doing the right thing by asking questions. I hope you feel free to keep asking and posting here. The members here have been through all sorts of seizure-related things, and have plenty of advice and support to offer. Let us know how things go, and feel better soon.

Best,
Nakamova

 

[Endless]

Hi, Kris,

Gosh, you've had a tough few weeks. I'm so sorry.

I agree with Nakamova. It's important to see a neurologist to help you sort through it all and figure out what's going on. It could be seizures, or it could be a sleep disorder, or something else.

People who have febrile seizures are more likely to have seizures as an adult. Depending on what study you look at, there is anywhere from a 10% to 20% chance. (The average person has a 1% chance of epilepsy)

http://www.medicinenet.com/febrile_seizures/article.htm

Since you were in the hospital I assume you have talked with your parents about all this? Do they have a plan in mind?

If you can see a neurologist, it's important to do so quickly. If these are seizures, the faster the doc gets them stopped, the better the odds that they will stay stopped for your lifetime.

Hang in there. (Also hang in HERE. It's a great group of people who give great support)

 

[alivenwell]

That pretty much sounds like my situation when I was a kid as well. Total exhaustion or pain in muscles that I twisted were pretty common after a seizure. Waking up with a chewed up mouth was also pretty common. It told me to slow down, get rid of whatever stress I had at the time, layoff caffeine and try to get enough sleep.

Have you had your sugar levels monitored? It is possible that they have also dropped too low. A complete blood test should be done.

I would also go see a neurologist rather than a general doctor who can do numerous tests on you and help you choose an appropriate treatment for this.

Anyway, welcome to CWE!