Infantile Spasm or Benign Infantile Myoclonus

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Devonsmom

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My 6 month old has had three seizures which we have seen. I am going out of my mind with worry. She has had one normal EEG and will be doing a 48 hour one soon. I can't help but look at her and wonder if I am going to loose her, if not completely, will she start to regress. We are playing "wait and see" to determine which condition she has. Its very hard.

I would love to hear from anyone with advise.

S
 
Hi Devonsmom, welcome.

I don't have specific advice, just wanted to say I hope you get some answers soon. I know the "not knowing" can be so stressful.

Best,
Nakamova
 
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