I typed some of this on another website, but wanted to get your opinions and help.
TYPED JUNE 2010
Basically, over a 5-6 day period, every 2-3 months, i have these intense lapses in memory. Can't remember who I am, what I am doing and can't talk really for 15-30 seconds at a time (worst is 3-4 minutes). During this time I have intense deja vu (or my brain tells me I am), and I swear I can tell you exactly what you are about to say before you say it, which to me means my brain is jacked up.
its horrible, and for the first 7 years I knew my wife she didn't believe me. It happened back in December in front of her and she saw me break into an all out sweat on my forehead and when she asked me questions, I just mumbled back something that completely did not make sense. So now she believes me. I think she is scared to know what is really up.
I am completely NOT kidding about this. it sucks royally. Usually if there's a bathroom around I can make it into there and just wait it out. at the worst, I feel like vomiting.
when its happening, I cannot think straight. its really a horrible feeling. I have no clue where I am and what is happening. I can still drive when it happens. but most of the time I pull over. I was driving today tothe bank after meeting a friend for Pizza. It happened as I was pulling out of the drive through, and it took me 10-12 minutes to figure out where I was going and then where the library was (my work).
I didn’t think I was epileptic and I don't know that its a seizure. it happens pretty much on cue every 2-3 months, and a day before it starts, I know its going to happen. Then it happens on and off for 5 days on average. it started Friday and today has been the worst. Usually day four is the worst and it gets better and is done within 5-6 days.
by wednesday I will be fine. I can keep my eyes open. if i type, however, you'd see just mumbo-jumbo.
having a blast now. not as bad as usual,
i just have to put my head down.
stomach didn't hurt as bad on that one.my head is hot though. sweaty.feel like putting my head down.
I have had the suggestion by one person to go to a neurologist. i am scared to death to. i am sweating like a pig now. today it's been every 45 minutes to an hour and a half. probably the peak I've ever had it. Sucks to be me.
The tough thing is that it only happens every 2-3 months. I'm just so down when it happens. I always fear I will be around someone and talking to someone and say something stupid. I happened to be opening up 3 CDs at local banks today, while driving a rental car. All okay so far! It's called managing the problem. Twice I just had to pull over and wait it out.
My pulse doesn't go up when it happens.
Part of me just doesn't know where to start, or what to say. this is probably the best I have done putting it into words. when it happens, it is as though I know what you are going to say before you say it. ive hidden it for years. i tried telling my wife for 7 years and then she finally believed me this past winter. THAT was such a release. I have felt alone for years. ive been ignoring it for years hoping it’d go away.
Thank you all for sharing this. I can't begin to express how important this is that we meet up and talk about it. I am considering trying the B12 to see if I don't have another episode before my Birthday in September. If I do, then I will go to a doctor and tell them about a few thoughts.
JULY 2010
I will say a few things more:
I hit my head trying to jump down a flight of stairs when I was 12 (I know....stupid)....and had 6 stitches on the front 1/3 of my noggin. However, I think I remember times before this that I had very intense, very re-occurring dreams, since I was in the 8-9 years of age. reoccurring dreams at night.
I remember just being in a panic the first year we were married.....mind racing....happening at night. it was horrible. I remember being in college, laying in my dorm room bed, huddled in a corner, scared for nothing, but just fearful, and then not remembering what happened at all the next day.
My dad suffers from a condition called adhesive arachnoiditis, as well as neuropathy. I don't know if any of those things are conditions that would contribute to my having this issue. I doubt it. He had a myelogram back in the 70s before I was born, and the stuff they injected into the subarachnoid space in his spine called pantopaque (oil based dye) caused this arachnoiditis condition to flare up in people who had the procedure done.
He is 55 and can barely walk without a cane. all his nerves are becoming damaged/eaten away, and it's very painful/
other than that, no real history in my family of anything worthwhile. As of two weeks ago, I was a mess, now, I feel better, although, this is probably the first time that I am experiencing a "slower" feel to my brain than normal. Usually my episodes come and go with little to no issues the two to three months between.
NOT SO now. I feel just out of it. I have trouble remembering simple stuff and also what I studied in grad school. I just graduated from Grad school yesterday, and if you ask me what I learned, I'd have trouble coming up with complete thoughts on subjects. I can answer questions, but coming up with information is tough. This is NOT who I normally am. I’m usually an information warehouse (thus, the Library Science degree).
Typed TODAY
I have very VERY strong connections to my childhood. I grew up in Oregon till I was 10, and am completely obsessed with it; yet, I remember very few specifics about my childhood at all. Important memories that are talked about by my parents are completely gone from my memory. I do not remember 8 years ago going to DC for a trip with my wife; not at all. I see pictures of it, and it doesn’t ring a bell. Yet, my wife says I was so excited to go there.
I remember faces very well and recognize people exceptionally well; yet, I cannot place where I know them from and rarely remember names. My wife and I are having our second child, and she is getting frustrated with me as I cannot remember the name “we” picked out for a boy.
In late October of 2010, I talked with a doctor who said I sounded “stressed”. I had been let go of my job in July, and decided that I needed to find out what was going on while I still had insurance. SO I went and told him what I thought it might be, but I knew that it could become a pre-existing condition for new insurance once I get a new job. He decided to have me try Adderol and Lexapro, to see if that would help with my focus and my ability to relax. Basically, drugs for ADD. He wanted to take the diagnosis slowly, but he is a simple family doctor.
Since then, I have had 3 bouts of “seizures”, spread out exactly 2.5-3 months apart. They last for 3-6 days and the first two rounds were not as bad as the previous ones, although the most recent bout which was two weeks ago was pretty draining. Most of it is the freezing of what I am doing, having a feeling come from the pit of my stomach, and then having my mind race with strange thoughts, sometimes a smell, the déjà vu, and then feeling just exhausted afterwards. When I get less sleep, it gets worse.
Where the first 8 years of our marriage, I could not remember a single time where I dreamed at night, now, since I have been on the meds, my dreams are very intense, odd, weird, and I remember them after I wake up. This is all the time. It’s actually quite exhausting all this dreaming…I wake up tired and all I can think about all day are the dreams I had in the night.
When I drive, and listen to a CD on the way to work, I will stop the car and get out. Work for 8-9 hours, then get back in the car. I then start humming the exact EXACT spot where the CD left off in the morning, turn the car on, and there it is.
I actually love all this about me, but I am worried as to the implications.
TYPED JUNE 2010
Basically, over a 5-6 day period, every 2-3 months, i have these intense lapses in memory. Can't remember who I am, what I am doing and can't talk really for 15-30 seconds at a time (worst is 3-4 minutes). During this time I have intense deja vu (or my brain tells me I am), and I swear I can tell you exactly what you are about to say before you say it, which to me means my brain is jacked up.
its horrible, and for the first 7 years I knew my wife she didn't believe me. It happened back in December in front of her and she saw me break into an all out sweat on my forehead and when she asked me questions, I just mumbled back something that completely did not make sense. So now she believes me. I think she is scared to know what is really up.
I am completely NOT kidding about this. it sucks royally. Usually if there's a bathroom around I can make it into there and just wait it out. at the worst, I feel like vomiting.
when its happening, I cannot think straight. its really a horrible feeling. I have no clue where I am and what is happening. I can still drive when it happens. but most of the time I pull over. I was driving today tothe bank after meeting a friend for Pizza. It happened as I was pulling out of the drive through, and it took me 10-12 minutes to figure out where I was going and then where the library was (my work).
I didn’t think I was epileptic and I don't know that its a seizure. it happens pretty much on cue every 2-3 months, and a day before it starts, I know its going to happen. Then it happens on and off for 5 days on average. it started Friday and today has been the worst. Usually day four is the worst and it gets better and is done within 5-6 days.
by wednesday I will be fine. I can keep my eyes open. if i type, however, you'd see just mumbo-jumbo.
having a blast now. not as bad as usual,
i just have to put my head down.
stomach didn't hurt as bad on that one.my head is hot though. sweaty.feel like putting my head down.
I have had the suggestion by one person to go to a neurologist. i am scared to death to. i am sweating like a pig now. today it's been every 45 minutes to an hour and a half. probably the peak I've ever had it. Sucks to be me.
The tough thing is that it only happens every 2-3 months. I'm just so down when it happens. I always fear I will be around someone and talking to someone and say something stupid. I happened to be opening up 3 CDs at local banks today, while driving a rental car. All okay so far! It's called managing the problem. Twice I just had to pull over and wait it out.
My pulse doesn't go up when it happens.
Part of me just doesn't know where to start, or what to say. this is probably the best I have done putting it into words. when it happens, it is as though I know what you are going to say before you say it. ive hidden it for years. i tried telling my wife for 7 years and then she finally believed me this past winter. THAT was such a release. I have felt alone for years. ive been ignoring it for years hoping it’d go away.
Thank you all for sharing this. I can't begin to express how important this is that we meet up and talk about it. I am considering trying the B12 to see if I don't have another episode before my Birthday in September. If I do, then I will go to a doctor and tell them about a few thoughts.
JULY 2010
I will say a few things more:
I hit my head trying to jump down a flight of stairs when I was 12 (I know....stupid)....and had 6 stitches on the front 1/3 of my noggin. However, I think I remember times before this that I had very intense, very re-occurring dreams, since I was in the 8-9 years of age. reoccurring dreams at night.
I remember just being in a panic the first year we were married.....mind racing....happening at night. it was horrible. I remember being in college, laying in my dorm room bed, huddled in a corner, scared for nothing, but just fearful, and then not remembering what happened at all the next day.
My dad suffers from a condition called adhesive arachnoiditis, as well as neuropathy. I don't know if any of those things are conditions that would contribute to my having this issue. I doubt it. He had a myelogram back in the 70s before I was born, and the stuff they injected into the subarachnoid space in his spine called pantopaque (oil based dye) caused this arachnoiditis condition to flare up in people who had the procedure done.
He is 55 and can barely walk without a cane. all his nerves are becoming damaged/eaten away, and it's very painful/
other than that, no real history in my family of anything worthwhile. As of two weeks ago, I was a mess, now, I feel better, although, this is probably the first time that I am experiencing a "slower" feel to my brain than normal. Usually my episodes come and go with little to no issues the two to three months between.
NOT SO now. I feel just out of it. I have trouble remembering simple stuff and also what I studied in grad school. I just graduated from Grad school yesterday, and if you ask me what I learned, I'd have trouble coming up with complete thoughts on subjects. I can answer questions, but coming up with information is tough. This is NOT who I normally am. I’m usually an information warehouse (thus, the Library Science degree).
Typed TODAY
I have very VERY strong connections to my childhood. I grew up in Oregon till I was 10, and am completely obsessed with it; yet, I remember very few specifics about my childhood at all. Important memories that are talked about by my parents are completely gone from my memory. I do not remember 8 years ago going to DC for a trip with my wife; not at all. I see pictures of it, and it doesn’t ring a bell. Yet, my wife says I was so excited to go there.
I remember faces very well and recognize people exceptionally well; yet, I cannot place where I know them from and rarely remember names. My wife and I are having our second child, and she is getting frustrated with me as I cannot remember the name “we” picked out for a boy.
In late October of 2010, I talked with a doctor who said I sounded “stressed”. I had been let go of my job in July, and decided that I needed to find out what was going on while I still had insurance. SO I went and told him what I thought it might be, but I knew that it could become a pre-existing condition for new insurance once I get a new job. He decided to have me try Adderol and Lexapro, to see if that would help with my focus and my ability to relax. Basically, drugs for ADD. He wanted to take the diagnosis slowly, but he is a simple family doctor.
Since then, I have had 3 bouts of “seizures”, spread out exactly 2.5-3 months apart. They last for 3-6 days and the first two rounds were not as bad as the previous ones, although the most recent bout which was two weeks ago was pretty draining. Most of it is the freezing of what I am doing, having a feeling come from the pit of my stomach, and then having my mind race with strange thoughts, sometimes a smell, the déjà vu, and then feeling just exhausted afterwards. When I get less sleep, it gets worse.
Where the first 8 years of our marriage, I could not remember a single time where I dreamed at night, now, since I have been on the meds, my dreams are very intense, odd, weird, and I remember them after I wake up. This is all the time. It’s actually quite exhausting all this dreaming…I wake up tired and all I can think about all day are the dreams I had in the night.
When I drive, and listen to a CD on the way to work, I will stop the car and get out. Work for 8-9 hours, then get back in the car. I then start humming the exact EXACT spot where the CD left off in the morning, turn the car on, and there it is.
I actually love all this about me, but I am worried as to the implications.
