Hello,
My name is Ruth, and if JenM is still around these boards, I'd love to contact her? I live in Maryland...
I have twin daughters. One of them was recently dx with typical absence seizure in late October of this year. I recognized the symptoms when I saw it happening..and was able to shoehorn myself into an EEG appt at Children's Hospital in DC for confirmation. Her subsequent MRI reading is normal, thankfully.
I happened to read JenM's posts (and Robins") and of course, the great success with Stacy because I cannot stand putting the still-as-of-yet non therapeutic dose of ethosuximide in my daughters' body every day. She has on "bad day" maybe 10-12 small seizures, about 1-4 seconds each. On a good day, it is one or two. In the last month, she's had one seizure free day. Oddly (thankfully?) she is doing well in school and is enjoying school, despite this condition.
I am having her tested by a pediatric allergist later this month for sensitivity to gluten, soy, and milk...just to make sure I'm not missing anything. I also just spoke to a neurofeedback therapist today (EEG)...and he has had some success with childhood epilepsy, but has worked with children older than mine.
My daughter is very young, so I'm wondering if she can even have neurofeedback therapy as an option or not...any opinions on this? She is actually a reasonably mature kid...and so I think if she sees this as a challenging game, she'd probably LOVE the training sessions...
I just worry I'm starting on a path of slippery slope by even initiating this drug therapy..when all I can see is titrating up and up looming ahead of us.
Thanks for reading my post...
-RuthC
My name is Ruth, and if JenM is still around these boards, I'd love to contact her? I live in Maryland...
I have twin daughters. One of them was recently dx with typical absence seizure in late October of this year. I recognized the symptoms when I saw it happening..and was able to shoehorn myself into an EEG appt at Children's Hospital in DC for confirmation. Her subsequent MRI reading is normal, thankfully.
I happened to read JenM's posts (and Robins") and of course, the great success with Stacy because I cannot stand putting the still-as-of-yet non therapeutic dose of ethosuximide in my daughters' body every day. She has on "bad day" maybe 10-12 small seizures, about 1-4 seconds each. On a good day, it is one or two. In the last month, she's had one seizure free day. Oddly (thankfully?) she is doing well in school and is enjoying school, despite this condition.
I am having her tested by a pediatric allergist later this month for sensitivity to gluten, soy, and milk...just to make sure I'm not missing anything. I also just spoke to a neurofeedback therapist today (EEG)...and he has had some success with childhood epilepsy, but has worked with children older than mine.
My daughter is very young, so I'm wondering if she can even have neurofeedback therapy as an option or not...any opinions on this? She is actually a reasonably mature kid...and so I think if she sees this as a challenging game, she'd probably LOVE the training sessions...
I just worry I'm starting on a path of slippery slope by even initiating this drug therapy..when all I can see is titrating up and up looming ahead of us.
Thanks for reading my post...
-RuthC
