Hello, I'm gust getting started here. Having one of those bad days we all fight to cope with. I set up a referral to an epileptologist today because my seizures have progressed to near-fatal. I had to be intubated for breathing problems (apparently I stopped doing so & it's required to do so) during a seizure about a week ago. I wasn't home for even two days when my daughter had a probable petit mal, falling down the stairs. I'm hoping to find friends, know if anyone has a vagal nerve implant, and find options to discuss with my doctor. My epilepsy is a real turkey. Multi focal, multi trigger, and rather stubborn about responding to meds (on Trilipeptal and Lamictal, Keppra gorks me out)
Just getting started
- Thread starter wynndsong
- Start date
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