Looking for some support

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dareu2bhealthy

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Hey! I'm new to this community. I am recently married to my husband who has epilepsy. We met 5 years ago and since then his siezures have gotten worse and worse. We are in limbo of testing for brain surgery at Vanderbilt. I guess I am just looking for a support system because it is hard to talk to my husband about my own feelings without getting him worked up and possibly that leading to another seizure.
 
dareu2bhealthy

Welcome to CWE, congratulations on your recent marriage. Living life is not easy and it gets harder when something like this is added to the equation, talk to your husband a little he needs to know just how much you are suffering as well and that he is not the only one going through this, you are there as well. Yes he will probably get worked up a bit but tell him to calm down you only want to talk to him and let him know how hard this is on you. Yes its going to be hard for you and for him to listen and realise just how much this affects you, you are not made of stone, you have feelings as well, so talk to your husband and if you feel you need to yell and scream there is the padded room just so you can do that. You will find support from the good people here and support from your husband as well. This is not easy to deal with but you will see light at the end of the tunnel.
 
Hello Dare and how are you today ? Congratulations on your New Marriage ! One thing I did early on in my journey was when I went over a year , then two years with no seizures I stood my ground when they wanted to change my Medicine . I was doing fine and I was thinking "If it's not broke don't fix it" . What medicine was your Husband on before his seizures increased ? I can't stress enough that you read about as many Meds and their side effects as you can . That is a Huge Place to start , Be your own advocate Know What Your Putting Inside of your Body . They didn't have so many Seizure meds when I had my first seizure maybe they had Five to Seven , I think it was closer to Five . Read Read and Learn all you can , too many times People just take what they suggest . Like I said when I became seizure free for a couple of years , I wasn't about to change anything . Stay in touch and I wish you more than luck with this . I hope you stay in touch . Hunter .
 
Hello Dare , I saw your post about your Husband , I have a question for you . What kind of Surgery is this that you and your Husband are looking into getting at Vanderbilt ? Is it surgery that cures every thing or just some things ? It's new to me that is why I am asking and tell me How are you two doing as we speak ? Is your Husband ever affected by the lighting in certain stores you may visit ? I have to wear Polarized Shades ALL THE TIME .
 
Hi dareu2bhealthy, welcome to CWE!

I hope you feel free to ask questions or vent as the mood strikes. Best of luck to you and your husband.
 
Is it possible you insist being with him when you see doc and you ask questions,your husband maynot be happy at first and a few arguments but in time he realise you did right thing.The doc explain things husband unable to
 
Dare,
Ask your questions! We are here to support anyone living with or dealing with E! I can only say that there are many aspects of E that surprise even people who have had E for an extended period of time.
If we can provide support, we are willing to do so!

ACsHuman
 
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