I have a brain injury which I got when I was a child. I got my first "seizure like" episode at 26 and it has continued on an off until now, I am in my 40's.
I generally get anxious, blankout, hulllicanate, wander and then blank out and sleep. I do not get tonic clonic seizure.
MRI revealed brain injury. I have done VEEG and EEG. Recorded nothing. I was considered not to have epilepsy now due to VEEG and EEG not registering anything. They have deemed this perhaps psychological issues with a possiblity of it being epilepsy due to brain injury.
This has been going on for years. At least 10 years. I told them, that psychology had not helped with this and I have been to many psychologist of all types, with little help.
I have now changed drs and going to female dr to see if it is hormone issues and brain injury. She is female epilepsy specialist locally. I am hoping for different opinions from this dr and feeling more comfortable.
I have been recommended Keppra, Tegretol or Clomazbam. I am extremely reluctant to try a med, as the med I am on works. I don't want to play with it and increase seizure frequency.
I have been in hospital four times. Many opinions and seemed to have found right med, as now I have not had one of this since late 2011 - a year and a half. It is nice to have something that works. I chose this med, and refused to move onto anything else. For some reason my current med is hard to get a hold of and I cannot get it from local GP only in emergency and small dose. I hae a letter from last neuro, giving me permission to have this med from GP rather than to have to go to epilepsy clinic (that is very full)
Thanks
I generally get anxious, blankout, hulllicanate, wander and then blank out and sleep. I do not get tonic clonic seizure.
MRI revealed brain injury. I have done VEEG and EEG. Recorded nothing. I was considered not to have epilepsy now due to VEEG and EEG not registering anything. They have deemed this perhaps psychological issues with a possiblity of it being epilepsy due to brain injury.
This has been going on for years. At least 10 years. I told them, that psychology had not helped with this and I have been to many psychologist of all types, with little help.
I have now changed drs and going to female dr to see if it is hormone issues and brain injury. She is female epilepsy specialist locally. I am hoping for different opinions from this dr and feeling more comfortable.
I have been recommended Keppra, Tegretol or Clomazbam. I am extremely reluctant to try a med, as the med I am on works. I don't want to play with it and increase seizure frequency.
I have been in hospital four times. Many opinions and seemed to have found right med, as now I have not had one of this since late 2011 - a year and a half. It is nice to have something that works. I chose this med, and refused to move onto anything else. For some reason my current med is hard to get a hold of and I cannot get it from local GP only in emergency and small dose. I hae a letter from last neuro, giving me permission to have this med from GP rather than to have to go to epilepsy clinic (that is very full)
Thanks