Hi All
I'm new to this forum but not new to epilepsy. 40yrs+
I'm 45. DX with Left TL CP. at about age 14. Had been having them as long as I can remember but how does a five year old explain de ja vu or lilliputhian (sp). "Mommy everything is funny?." moms answer "Just go outside and play".
My seizures changed to secondary generalized during my second pregnancy in my mid 20's
I usually average seizures every seven weeks.
My seizures have only been contolled on two occassions by meds for 6 months each time, but sadly the side effects were so sever I had to stop taking them. Keppra was the worst for me.
I have been an dilantin (for the third time) for 4 months now and have been seizure free. YAH. It is strange because dilantin didn't work for me before.
I'm thinking maybe it is hormone level changes from menopause that has stopped the seizures not dilantin.
Anyway that's my story (very short version)
I like reading other peoples ideas no matter how unusual some might seem.
I like to help others by making suggestions.
Sometimes my theories may be a bit far fetched but if your anything like me you will consider all posibilities in the hope of stumbling onto a cure.
Lorraine
I'm new to this forum but not new to epilepsy. 40yrs+
I'm 45. DX with Left TL CP. at about age 14. Had been having them as long as I can remember but how does a five year old explain de ja vu or lilliputhian (sp). "Mommy everything is funny?." moms answer "Just go outside and play".
My seizures changed to secondary generalized during my second pregnancy in my mid 20's
I usually average seizures every seven weeks.
My seizures have only been contolled on two occassions by meds for 6 months each time, but sadly the side effects were so sever I had to stop taking them. Keppra was the worst for me.
I have been an dilantin (for the third time) for 4 months now and have been seizure free. YAH. It is strange because dilantin didn't work for me before.
I'm thinking maybe it is hormone level changes from menopause that has stopped the seizures not dilantin.
Anyway that's my story (very short version)
I like reading other peoples ideas no matter how unusual some might seem.
I like to help others by making suggestions.
Sometimes my theories may be a bit far fetched but if your anything like me you will consider all posibilities in the hope of stumbling onto a cure.
Lorraine