My sun 4 years old suffers from epilepsy

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herbcap

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Hello there,

My son started his first seizures at 18 months. He is now 4 years and 4 months (in July 2013). Ever since it started his development has gone backwards. He has development issues, is unable to speak and in a way autistic. Non of the AED's seem to work well, still average of one seizure every two days. Since he started the ketogen diet only small improvements. He seizures are not getting much less, but they are shorter. Before 30-60 secs. Recently, still absences, but he doesn't loose consciousness, last less than 10 seconds. Sounds familiar?

His current AED drugs are depakine and tregretol
Ketogen diet (3:1) started end of March 2013

Any help or similar cases much appreciated.

Regards,
herbcap
 
Hi herbcap, welcome to CWE!

With the therapeutic diets it can sometimes take as long as 6 months before you see the full results. So hang in there! The fact that your son has shown small improvements is a good sign. Have you been consulting with your neuro and a dietician to see if the diet needs to be modified in any way?

I'm sorry the medications have been problematic. Do you know if any of your son's developmental issues are related to the anti-seizure meds?
 
Hi Nakamova

Thank you for your welcome words.

The neurologist wants to continue the diet but he was hoping on a better response. As we are. Assuming that roughly speaking one third has very positive results, one third modest results and one third no improvements at all, Levi is in the middle category. Now almost four months, his seizures are definitely less extreme, so there is an improvement. Also in the number of seizure free days. But only today I witnessed a 50 secs loss of consciousness. There is still a built up of potential.

About the medication, it might not help his development. But it seems that the language section of his brain is malfunctioning. I can't blame it all on the drugs. The neurologist does not want to discontinue a second drug at this point. (originally he was on three drugs, now on two)

Thanks for your thoughts,

herbcap
 
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