Hi
Ihave PD since 2009,I had a small focal seizure in 2014 unconfirmed.Two months later i started myoclonic jerks.I found a desription of them recently.My jerks seem to start with intentional movement like pill rolling or reaching also side stepping.Then I also get a shock like pain and then jerks.They do seem to be more frequent but dont last long depending what Im doing.
I had a eeg in 2015 which rulled out epilepsy but a doctor now says I might need more eeg to confirm.I know these jerks can be caused by many things besides PD and epilepsy Trying to get doctors to rule out all possabitys before a DX.
My PD docs are unfamiliar with my problem so they like to play with psychgenic babble.Very unprofessional an d it makes me lose faith in the profession.Having PD is bad enough without adding poor care on top of it
Well also the docs here think more of their peers and their mistakes then caring for a patient.
I hope the epileptic patients here do better than the parky community in care
thanks
john
Ihave PD since 2009,I had a small focal seizure in 2014 unconfirmed.Two months later i started myoclonic jerks.I found a desription of them recently.My jerks seem to start with intentional movement like pill rolling or reaching also side stepping.Then I also get a shock like pain and then jerks.They do seem to be more frequent but dont last long depending what Im doing.
I had a eeg in 2015 which rulled out epilepsy but a doctor now says I might need more eeg to confirm.I know these jerks can be caused by many things besides PD and epilepsy Trying to get doctors to rule out all possabitys before a DX.
My PD docs are unfamiliar with my problem so they like to play with psychgenic babble.Very unprofessional an d it makes me lose faith in the profession.Having PD is bad enough without adding poor care on top of it
Well also the docs here think more of their peers and their mistakes then caring for a patient.
I hope the epileptic patients here do better than the parky community in care
thanks
john