new hear and my partner is so obssesd with my epilepsy

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iv had epilepsy for 3 years and my fits are quite bad i fall to the floor and am out of it for hours :( i normally have to go to hospitail my main problem tho is my partner has become so obsessed with my epilepsy he worries to the point it is affecting our relationship ,he says he cant help but worry he is always asking if im ok if iv eatten if im to tired ect its become obbsesive he says he knows he has a peoblem cus he just cant stop panicing but at the same time all this is making me feel like an abnormal freek HELP
 
Hi mssexyjade, welcome to CWE!

Seems like our friends and family are often either too distant or too smothering when it comes to dealing with the epilepsy. I think it can be very hard for someone on the outside to know how to behave -- they see something as dramatic as a seizure, and it sets off all sorts of alarms and whistles... You and he need to have a good long talk about setting some boundaries. One thing that can help is giving him designated "check-in times" (once a day, once a week, whatever works) where he's allowed to be a noodge. If it's seems like that won't work, it might be worth trying counseling together. Sometimes it can help to have a third party help straighten things out.

Do you and your neurologist have a plan to get your seizures under control? Are there different meds/dosages that you can try? Stopping the seizures would obviously go a long way to easing some of your partner's concerns.

Best,
Nakamova
 
hi mssexyjade

I have to confess im the same with my daughter has your partner . I panick when the phone goes . I never answer her phone calls with a "hi " , its always "whats wrong " . I no she gets frustrated with me. I just wish it was me with E and not her . It must be hard for him to . If hes seen you seizuring it can be the most scary thing to see the person you love go through that. Amy had a small seziure this week and again the whole family are constanly checking in on her . phoning her . Thats the way it is in our home , normality dosnt exsist at the moment unfortunatly.

Best of luck

Sharron
 
well, I think its real sweet of your hubby, sounds like you are one loved lady...though I understand you feel smothered…

Your hubby’s response to your seizures may come from lack of true understanding…and therefore emotional response when it should be caring/educated response...has he read a good informative book on E? There are marvelous book references to good no excellent books on CWE forum..

http://www.coping-with-epilepsy.com/forums/f40/epilepsy-book-reviews-5492/

I love this simple plan for not worrying, because by worrying 90% less, can only be a good thing.

http://www.success.com/articles/152-making-the-choice-not-to-worry
 
It can be very annoying. Though I guess it's nice that people care. Sometimes I even get mad at my family members for incessantly bringing it up. But then when I have a bad seizure, it's probably a good thing they're there doing what they do. It just gets on my nerves when they do it when it isn't necessary.
 
I used to be obsessive about our daughter and her epilepsy. Constant worry, constant checking in on her etc. I finally had to draw the line because not only was it annoying to her, but wearing me out. We now have lines, kind of like Nakamova was talking about. For example I dont want to ask her twice a day if shes taken her pills, and she feels like a baby when I ask so we keep her pill organizer someplace that I can see it. I can peek at it, and I know if shes taken them or not. If she hasnt I just say "dont forget to take your pills".

Statistically speaking men want to 'fix' and this is something that he cant 'fix' however, it probably makes him feel better and more involved and more in control to know how you feel at every moment, what you have or havent eaten etc... Maybe put your pill organizer where he can see it so he doesnt have to ask you. Get a bulletin board to post a check sheet with breakfast, lunch, dinner and snacks so all you have to do is put a checkmark and he'll know that you already ate. Just some ideas.

Below is how I feel, and maybe how he is feeling too...

It is so hard to watch somebody I love and care about have seizures. I truely feel so increadibly helpless. I worry that she is in pain and of course she doesnt remember it so she couldnt tell me if she had been in pain. I worry that this might be the one that she doesnt come out of..what would I do without her in my life? I have been able to protect her from the boogy man, the spider on the wall, the snake in the back yard and been able to stand up for her when she wasnt able to stand up for herself. It kills me to know there is nothing I can do to make this go away, to make it better. I cant smoosh it with my foot and I cant turn on the lights so she can see its all ok. Im her mom, im supposed to be able to protect her right? Not this time, the only way I feel like I am protecting her is to make sure shes taken her pills, goes to bed at a decent time, and makes some healthier food choices. I try not to be pushy and obsessive and when I am, its because its the only thing I know to do and the only thing left that I have control over.
 
Kaitybugsmom, your post bought tears to my eyes. Even though I am the one with epilepsy in our house, my son has autism and is a constant worry, not one I can nag about though. I've actually found recently my son, in his own adorable way, has begun to worry about me. He can tell when I am woozy or when I have a headache. If I drag myself out of bed sore and exhausted form a probable night seizure, he will ask if I am sick and then be on his best behaviour. It pains me to see him worry about me, he is only 7, and has enough troubles of his own without worrying about me. On the other hand to see him capable of such awareness of those he cares about is a wonderful thing. :)
 
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