New Here...please help...am i having a simple partial seizure?

[vaz119]

Hi there

I recently have been having 'funny turns'. I have been seen by a neurologist and had an MRI and a EEG. He said my MRI is normal and I "don't have epilepsy" and has discharged me...but my 'funny turns' have continued.

After reading a lot of your comments I think my turns sound like some of your simple partial seizures and I wonder if you could help

I''ll describe them as best as I can

* I get a really horrible feeling prior to it (as In I know the turn is coming), difficult to describe...not sick as such, not dizzy or light headed...just feel like complete crap. Husband says I become very irritable and I usually find noise too loud (almost overwhelming)

*it feels like I'm starting to slow down (I describe it like the batteries running out), moving and talking become very difficult and I have to concentrate very hard to do this

*when it starts I cannot move AT ALL (apart from my eyes). Its like I literally freeze like a statue. It usually happens when I'm sitting but has happened standing

*I cannot speak at all

* I start crying hysterically (it is very frightening and frustrating but I'm not sure of that's what causes the crying)

*can last 1 minute but the longest was 15 minutes

*it finishes abruptly and I can instantly talk and move normally (and I do not feel unwell)

* I can fight this and try to stop it happening but it just means the horrible crappy feeling just lasts longer, but if I 'let' the full thing come once the 'frozen statue' thing and the 'cant speak' thing happens there is nothing I can do to 'snap out of it'


Any input or advice would be much appreciated.

Vaz

 

[N Sperlo]

First off, welcome to CWE.

You'll probably get the same answer from everyone. That will be, "Maybe".

We can't give you a definitive answer, but I can tell you a simple MRI and EEG will not give a definitive answer either. The doctor is not giving you the time, just taking your money. Find another doctor for another opinion.

 

[vaz119]

Many thanks for taking the time to reply...

I have asked for a new referral back to neurology but to see someone different.

Are there specific tests that would be better?

Sent from my SM-G930F using Tapatalk

 

[acshuman]

! ! ! ! Welcome to CWE ! ! ! !

vaz119,

First thing is that N Sperlo is very right! You need to fund a different neurologist. With the number of tests that can be used to find out whether or not a person has E that neurologist(?) sure wasn't trying to help you find an answer to your problem.
Every person's case is different and that means that each case needs to be treated in a way that may work on only that person's case. This also means that what works for one person could work totally differently for someone else!
It can take what seems like forever for diagnosis, but you definitely want the diagnosis to be the correct one and NOT something that a doctor rushed to make!
I have said this to many people who may be dealing w/Epilepsy(E) for the first time! Two of the biggest allies of a person looking for a diagnosis and a treatment plan are Time and Patience. You have to be able to have Patience because of the Time it may take for a diagnosis because of the huge number of causes that may be found. The cause may be something that you have literally forgotten about if it had to do with your head and any knocks it may have taken previously.
A good idea for a person who is new to E is to do some research using Google. Just google 'epilepsy information' and you can read many articles about E and what can be the causes.
I was diagnosed w/E 50+ years ago at the age of 11. Myself and many other CWE members have many years of experience living w/E.

acshuman

 

[Porkette]

Hi vaz119,

Welcome to CWE! I agree with the others you need to get a second opinion go see an Epileptologist which is a Dr. who specializes in E. Just like you there will be times when
I can't speak for a few seconds and I'm conscious then I'm able to speak. My Dr. told me
I was having simple partial seizures that can sometimes lead into an absence or complex partial seizure for me. I've had E. for 44 yrs. and when the Dr. couldn't find all the damage they did a spect and pet scan along with a wada test and that is what showed them the damage on my right temporal lobe along with the cause of my seizures. Start keeping track of these possible seizures write down what time they happen and describe them on a small calendar. By doing this the Dr. may see a pattern in your possible seizures. If I may ask do you feel confused or tired after all of this has happened to you and o you get a headache? This is what happens to me after a seizure. Wishing you only the best of luck and May God Bless You!


Sue

 

[Frink]

Hi VAZ119,
Welcome to CWE.

I wish I could answer your question but I cannot. Like others have said, keep looking for answers and for a better neurologist/epileptologist.

 

[masterjen]

There are a few things your symptoms could be related to, in my opinion. But all any of us can do is offer an opinion since none of us here are experts. As the others have said seek the input from another neurologist and if it happens that epilepsy is ruled out once again, ask what kind of doctor they recommend you see for evaluation and hopefully treatment.

 

[Topcat]

Welcome - all I can say is that I agree with the others

 

[hydrogyrum]

Acshuman, please get rid of that avatar. The flinging bird wings cause me to avoid your posts.

Just get yourself a better picture of a bluebird. Seriously.