Hello all. I am so happy there is a site like this available! I am hoping someone can help out here.
I am in a post-ictal state right now. I had a brain bleed and surgery in 03 after onset of TC seizures and an MRI showing a cavernous angioma in my occipital lobe. I continued to have full blown seizures until 07. I still have migraines every month with vision loss due to the surgery.
Something strange has started happening and my Neurologist dismissed it as nothing. Last week, I was perfectly fine at home when I felt the horrible wave of adrenaline and "locking up" that comes before a seizure. I have panic attacks and this was different. I can always talk myself out of a panic attack. Both of my arms went numb and my tongue had the electric shock some people on here have posted about.
I couldn't talk to call 911. It was strange. I didn't even reach for my phone and ran out to the hallway in my apartment complex. I eventually started screaming help for anyone and my neighbor came out and called 911. I couldn't tell paramedics my allergies, the day of the week, but had calmed down so much I refused to go to the hospital. I was humiliated and thought maybe it was a panic attack after all. Major headache after plus a feeling of not being on planet earth.
Unfortunately, I was at work today and this time was mid sentence when it happened again. The room entirely changed perspective on me and I could NOT speak at all. The electric jolt came back and I stood up and walked to another room but I don't know why I did that. My arms were both numb again. I didn't know where I was or where to walk but I started walking because I couldn't talk. Lasted about 20 seconds. I was thirsty after and the headache came back in the same spot again. 4 days inbetween.
My Neuro has me on 3,000mg Keppra XR and 200mg Topamax daily. It took from 03 to 07 to find this combo to stop the full blown seizures I used to get. He said he can not up my dose again or check levels. I think he thinks I am faking at this point but this is scaring me badly. The headache and exhaustion make me think it is something more than panic. Has anyone else ever had these symptoms? I am also trying to hide this from my employer. Thank you!
I am in a post-ictal state right now. I had a brain bleed and surgery in 03 after onset of TC seizures and an MRI showing a cavernous angioma in my occipital lobe. I continued to have full blown seizures until 07. I still have migraines every month with vision loss due to the surgery.
Something strange has started happening and my Neurologist dismissed it as nothing. Last week, I was perfectly fine at home when I felt the horrible wave of adrenaline and "locking up" that comes before a seizure. I have panic attacks and this was different. I can always talk myself out of a panic attack. Both of my arms went numb and my tongue had the electric shock some people on here have posted about.
I couldn't talk to call 911. It was strange. I didn't even reach for my phone and ran out to the hallway in my apartment complex. I eventually started screaming help for anyone and my neighbor came out and called 911. I couldn't tell paramedics my allergies, the day of the week, but had calmed down so much I refused to go to the hospital. I was humiliated and thought maybe it was a panic attack after all. Major headache after plus a feeling of not being on planet earth.
Unfortunately, I was at work today and this time was mid sentence when it happened again. The room entirely changed perspective on me and I could NOT speak at all. The electric jolt came back and I stood up and walked to another room but I don't know why I did that. My arms were both numb again. I didn't know where I was or where to walk but I started walking because I couldn't talk. Lasted about 20 seconds. I was thirsty after and the headache came back in the same spot again. 4 days inbetween.
My Neuro has me on 3,000mg Keppra XR and 200mg Topamax daily. It took from 03 to 07 to find this combo to stop the full blown seizures I used to get. He said he can not up my dose again or check levels. I think he thinks I am faking at this point but this is scaring me badly. The headache and exhaustion make me think it is something more than panic. Has anyone else ever had these symptoms? I am also trying to hide this from my employer. Thank you!
